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Nemaline Myopathy Family Gathering
June 24 @ 8:00 am - June 25 @ 5:00 pm
This will be a great opportunity to gather, connect and share knowledge.
2:00 – 4:45 pm Social and Knowledge Sharing
NYU Residence Hall gathering room on the second floor
New York, NY
5:00 – 8:00 pm Dinner at Sarabeth’s (no cost)
381 Park Ave S, New York, NY 10016
Non-oral eaters are welcome, too! The restaurant is within walking distance of the afternoon gathering.
Supported by A Foundation Building Strength, the Krueger Baier Family and is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award EAIN-2679.