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December 2015

New York Family Event

December 14, 2015 @ 12:00 pm - 3:00 pm

Join us in New York City for the Nemaline Myopathy Family Event. Relax and share information with families affected by NM.

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March 2016

LoveLiv 2016

March 13, 2016 @ 2:30 pm - 3:30 pm
SoulCycle Culver CIty, 8820 Washington Blvd
Culver City, CA 90232 United States
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For its fourth annual fundraiser benefitting A Foundation Building Strength (AFBS), LoveLiv will host a Soul Cycle ride! AFBS is seeking to fund additional research grants and all proceeds from Cycle for Strength will fund those studies.

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Cycle for Strength Palo Alto 2016

March 13, 2016 @ 7:00 pm - 8:00 pm
SoulCycle Palo Alto, 600 Stanford Shopping Center
Palo Alto, CA 94304 United States
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A Foundation Building Strength invites you to a SoulCycle ride to raise money for critical research! AFBS remains the only non-profit worldwide…

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July 2016

Nemaline Myopathy Conference and Family Social

July 8, 2016 @ 4:00 pm - July 10, 2016 @ 3:00 pm
Crowne Plaza Hotel, 66 Hale Ave
White Plains, NY 10601 United States

Nemaline Myopathy Conference and Family Social SAVE THE DATE: July 8-10, 2016 Updates on the latest NM research, given by the world’s top…

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October 2016

Run for Ethan and Nemaline Myopathy

October 9, 2016 @ 10:15 am - 12:00 pm
Thrifty Foods Kids Run, 520 Menzies St
Victoria, BC V8V 2H4 Canada
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Ethan is 2 years old and has a rare muscle disease called Nemaline Myopathy. He is a bright, goofy and sweet little boy…

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February 2017

Yoga Fundraiser in Jackson CA

February 11, 2017 @ 8:00 am - 9:00 pm
Amador Yoga, 218 Water St
Jackson, CA 95642 United States
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A Community Event Benefiting a Foundation Building Strength All day classes with special guest teachers, food trucks, raffles, and more! $35 Adult…

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March 2017

LoveLiv Cycle for Strength 2017

March 5, 2017 @ 3:00 pm - 4:30 pm
SoulCycle Culver CIty, 8820 Washington Blvd
Culver City, CA 90232 United States
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For the 5th annual LoveLiv fundraiser benefitting a Foundation Building Strength, we're having a SoulCycle ride and raising money for critical…

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June 2017

Nemaline Myopathy Family Gathering

June 24, 2017 @ 8:00 am - June 25, 2017 @ 5:00 pm
NYU Residence Hall New York, NY 10003 United States + Google Map

This will be a great opportunity to gather, connect and share knowledge.   Schedule 2:00 – 4:45 pm Social and Knowledge…

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March 2018

Cycle for Strength Palo Alto 2018

March 16, 2018 @ 6:30 pm - 9:00 pm
SoulCycle Palo Alto, 600 Stanford Shopping Center
Palo Alto, CA 94304 United States
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Join us at the Palo Alto Cycle for Strength to support Nemaline Myopathy (NM) research.

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March 2019

LoveLiv Cycle for Strength 2019

March 10 @ 1:00 pm - 2:00 pm
CYCLEBAR Culver CIty, 4130 Sepulveda Blvd
Culver City, CA 90230 United States
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Please join us in raising funds for desperately needed research! See you on a bike!

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