AFBS is excited to introduce you to our first Youth Ambassador, Greta Baier. Greta lives in New York City and has Nemaline Myopathy. She’ll be hosting a series of interviews with individuals in the Nemaline Myopathy community, shedding light on what life is like with NM, sharing tips and celebrating all of the wonderful people in our community.
In this first interview, Greta interviews Ellary who is 14 years old and lives in Portsmouth, RI. Ellary shares some of the challenges she faces as a teenager living with NM, and celebrates some of her awesome accomplishments. Hope you enjoy and stay tuned for more interviews!