By: admin

Pathway to a Natural History Study for Nemaline Myopathy
September 28, 2022

The fourth webinar in the series, “Amplifying the NM Community’s Voice”, focuses on the pathway to a Natural History Study for…

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Research Progress: Dr. Dowling’s CRISPR/Cas9 Project
August 9, 2022

A few years ago, AFBS funded a very ambitious project by Dr. Jim Dowling (SickkidsChildren’s Hospital, Canada) exploring the potential application…

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SciFam Welcomes NM Families & Researchers
July 28, 2022

The Nemaline Myopathy community joined together in person and virtually for the 2022 SciFam Conference this summer in Nashville, Tennessee, for…

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Research Fundamentals, Part 2 Webinar
May 24, 2022

The third webinar in the series, “Amplifying the NM Community Voice”, focuses on Part 2 of Research Fundamentals. Resources Included: Toolkit…

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Research Fundamentals Webinar
May 2, 2022

The second webinar in the series, “Amplifying the NM Community Voice”, focuses on Research Fundamentals. The webinar includes defining PCOR (Patient…

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A New Webinar Series: Amplifying the NM Community’s Voice
March 15, 2022

AFBS’ Youth Ambassador shares a brief summary of the first webinar in the series, “Amplifying the NM Community’s Voice”. The webinar…

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A Foundation Building Strength Receives Two Significant, Multi-Year Awards for Capacity-Building and Network-Building
January 31, 2022

PCORI and CZI awards lay foundation for game-changing growth and research momentum for Nemaline Myopathy

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RESEARCH PROGRESS: A YEAR IN REVIEW
December 8, 2021

With limited resources and low interest for rare diseases, research funded by A Foundation Building Strength (AFBS) is designed to make…

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AFBS Selected for Chan-Zuckerberg Initiative’s Rare As One Cohort
November 3, 2021

Today, A Foundation Building Strength announced its receipt of a $600,000 3-year grant from the Chan Zuckerberg Initiative (CZI) Rare as…

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