In: Nemaline Myopathy

Planning a Local NM-Focused Event Near You
January 17, 2023

This year, A Foundation Building Strength (AFBS) is excited to support smaller, regional gatherings for NM families to stay connected around the…

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A Year in Review: AFBS 2022
December 27, 2022

This past year, we have made incredible progress toward our mission of finding treatments for Nemaline Myopathy. Watch this video to…

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NYC Gathering Celebrates NM Families and Marathon Runners
November 12, 2022

Supporters, friends, AFBS Board Members and NM families joined together on November 5, 2022 in New York City to celebrate our…

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Pathway to a Natural History Study for Nemaline Myopathy
September 28, 2022

The fourth webinar in the series, “Amplifying the NM Community’s Voice”, focuses on the pathway to a Natural History Study for…

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Research Progress: Dr. Dowling’s CRISPR/Cas9 Project
August 9, 2022

A few years ago, AFBS funded a very ambitious project by Dr. Jim Dowling (SickkidsChildren’s Hospital, Canada) exploring the potential application…

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SciFam Welcomes NM Families & Researchers
July 28, 2022

The Nemaline Myopathy community joined together in person and virtually for the 2022 SciFam Conference this summer in Nashville, Tennessee, for…

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Research Fundamentals, Part 2 Webinar
May 24, 2022

The third webinar in the series, “Amplifying the NM Community Voice”, focuses on Part 2 of Research Fundamentals. Resources Included: Toolkit…

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Research Fundamentals Webinar
May 2, 2022

The second webinar in the series, “Amplifying the NM Community Voice”, focuses on Research Fundamentals. The webinar includes defining PCOR (Patient…

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A New Webinar Series: Amplifying the NM Community’s Voice
March 15, 2022

AFBS’ Youth Ambassador shares a brief summary of the first webinar in the series, “Amplifying the NM Community’s Voice”. The webinar…

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A Foundation Building Strength Receives Two Significant, Multi-Year Awards for Capacity-Building and Network-Building
January 31, 2022

PCORI and CZI awards lay foundation for game-changing growth and research momentum for Nemaline Myopathy

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