In: Nemaline Myopathy
Pathway to a Natural History Study for Nemaline Myopathy
September 28, 2022The fourth webinar in the series, “Amplifying the NM Community’s Voice”, focuses on the pathway to a Natural History Study for…
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Research Progress: Dr. Dowling’s CRISPR/Cas9 Project
August 9, 2022A few years ago, AFBS funded a very ambitious project by Dr. Jim Dowling (SickkidsChildren’s Hospital, Canada) exploring the potential application…
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SciFam Welcomes NM Families & Researchers
July 28, 2022The Nemaline Myopathy community joined together in person and virtually for the 2022 SciFam Conference this summer in Nashville, Tennessee, for…
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Research Fundamentals, Part 2 Webinar
May 24, 2022The third webinar in the series, “Amplifying the NM Community Voice”, focuses on Part 2 of Research Fundamentals. Resources Included: Toolkit…
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Research Fundamentals Webinar
May 2, 2022The second webinar in the series, “Amplifying the NM Community Voice”, focuses on Research Fundamentals. The webinar includes defining PCOR (Patient…
Read MoreA New Webinar Series: Amplifying the NM Community’s Voice
March 15, 2022AFBS’ Youth Ambassador shares a brief summary of the first webinar in the series, “Amplifying the NM Community’s Voice”. The webinar…
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A Foundation Building Strength Receives Two Significant, Multi-Year Awards for Capacity-Building and Network-Building
January 31, 2022PCORI and CZI awards lay foundation for game-changing growth and research momentum for Nemaline Myopathy
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AFBS Selected for Chan-Zuckerberg Initiative’s Rare As One Cohort
November 3, 2021Today, A Foundation Building Strength announced its receipt of a $600,000 3-year grant from the Chan Zuckerberg Initiative (CZI) Rare as…
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5 Tips to New Parents: From an NM Adult
September 20, 2021Hello, my name is Rachel Gross. Some of you may know me already, but if you don’t, allow me to introduce…
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