SciFam Welcomes NM Families & Researchers

July 28, 2022

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The Nemaline Myopathy community joined together in person and virtually for the 2022 SciFam Conference this summer in Nashville, Tennessee, for…

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Speaking Up and Speaking Out

June 16, 2021

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Ten year old Gavi shares her the challenges she faces with her voice, being understood and how she’s overcoming these challenges.

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