In: NM in School

Planning a Local NM-Focused Event Near You
January 17, 2023

This year, A Foundation Building Strength (AFBS) is excited to support smaller, regional gatherings for NM families to stay connected around the…

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SciFam Welcomes NM Families & Researchers
July 28, 2022

The Nemaline Myopathy community joined together in person and virtually for the 2022 SciFam Conference this summer in Nashville, Tennessee, for…

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Speaking Up and Speaking Out
June 16, 2021

Ten year old Gavi shares her the challenges she faces with her voice, being understood and how she’s overcoming these challenges.

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