In: RESEARCH

NYC Gathering Celebrates NM Families and Marathon Runners
November 12, 2022

Supporters, friends, AFBS Board Members and NM families joined together on November 5, 2022 in New York City to celebrate our…

Read More
Pathway to a Natural History Study for Nemaline Myopathy
September 28, 2022

The fourth webinar in the series, “Amplifying the NM Community’s Voice”, focuses on the pathway to a Natural History Study for…

Read More
Research Progress: Dr. Dowling’s CRISPR/Cas9 Project
August 9, 2022

A few years ago, AFBS funded a very ambitious project by Dr. Jim Dowling (SickkidsChildren’s Hospital, Canada) exploring the potential application…

Read More
Research Fundamentals, Part 2 Webinar
May 24, 2022

The third webinar in the series, “Amplifying the NM Community Voice”, focuses on Part 2 of Research Fundamentals. Resources Included: Toolkit…

Read More
Research Fundamentals Webinar
May 2, 2022

The second webinar in the series, “Amplifying the NM Community Voice”, focuses on Research Fundamentals. The webinar includes defining PCOR (Patient…

Read More
A New Webinar Series: Amplifying the NM Community’s Voice
March 15, 2022

AFBS’ Youth Ambassador shares a brief summary of the first webinar in the series, “Amplifying the NM Community’s Voice”. The webinar…

Read More
RESEARCH PROGRESS: A YEAR IN REVIEW
December 8, 2021

With limited resources and low interest for rare diseases, research funded by A Foundation Building Strength (AFBS) is designed to make…

Read More