In: RESEARCH
NYC Gathering Celebrates NM Families and Marathon Runners
November 12, 2022Supporters, friends, AFBS Board Members and NM families joined together on November 5, 2022 in New York City to celebrate our…
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Pathway to a Natural History Study for Nemaline Myopathy
September 28, 2022The fourth webinar in the series, “Amplifying the NM Community’s Voice”, focuses on the pathway to a Natural History Study for…
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Research Progress: Dr. Dowling’s CRISPR/Cas9 Project
August 9, 2022A few years ago, AFBS funded a very ambitious project by Dr. Jim Dowling (SickkidsChildren’s Hospital, Canada) exploring the potential application…
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Research Fundamentals, Part 2 Webinar
May 24, 2022The third webinar in the series, “Amplifying the NM Community Voice”, focuses on Part 2 of Research Fundamentals. Resources Included: Toolkit…
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Research Fundamentals Webinar
May 2, 2022The second webinar in the series, “Amplifying the NM Community Voice”, focuses on Research Fundamentals. The webinar includes defining PCOR (Patient…
Read MoreA New Webinar Series: Amplifying the NM Community’s Voice
March 15, 2022AFBS’ Youth Ambassador shares a brief summary of the first webinar in the series, “Amplifying the NM Community’s Voice”. The webinar…
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RESEARCH PROGRESS: A YEAR IN REVIEW
December 8, 2021With limited resources and low interest for rare diseases, research funded by A Foundation Building Strength (AFBS) is designed to make…
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