In: Youth with NM

SciFam Welcomes NM Families & Researchers
July 28, 2022

The Nemaline Myopathy community joined together in person and virtually for the 2022 SciFam Conference this summer in Nashville, Tennessee, for…

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Interview Series: Life with NM
December 7, 2021

AFBS is excited to introduce you to our first Youth Ambassador, Greta Baier. Greta lives in New York City and has…

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Speaking Up and Speaking Out
June 16, 2021

Ten year old Gavi shares her the challenges she faces with her voice, being understood and how she’s overcoming these challenges.

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