In: Youth with NM

Planning a Local NM-Focused Event Near You
January 17, 2023

This year, A Foundation Building Strength (AFBS) is excited to support smaller, regional gatherings for NM families to stay connected around the…

Read More
SciFam Welcomes NM Families & Researchers
July 28, 2022

The Nemaline Myopathy community joined together in person and virtually for the 2022 SciFam Conference this summer in Nashville, Tennessee, for…

Read More
Interview Series: Life with NM
December 7, 2021

AFBS is excited to introduce you to our first Youth Ambassador, Greta Baier. Greta lives in New York City and has…

Read More
Speaking Up and Speaking Out
June 16, 2021

Ten year old Gavi shares her the challenges she faces with her voice, being understood and how she’s overcoming these challenges.

Read More