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Yoga Fundraiser in Jackson CA
February 11, 2017 @ 8:00 am - 9:00 pm
A Community Event Benefiting a Foundation Building Strength
All day classes with special guest teachers, food trucks, raffles, and more!
$35 Adult / $25 Kids – includes all-day yoga, event tank, and refreshments.
Allie Leigh Allen was born with an extremely rare genetic disease called Nemaline Myopathy. She was born in respiratory distress and was immediately transferred to a hospital with a NICU to sustain her life. She was on CPAP support and a feeding tube before it was determined she would require two surgeries by the age of 6 weeks, one for a gastric feeding tube since she could not swallow on her own and the other for a tracheotomy so her breathing efforts could be supported by a ventilator. She spent the first 3 months of her life in the NICU before she was able to come home with her family. Allie requires around the clock care to maintain her unique medical needs. Through a dedicated team of nurses, therapists, doctors and her loving family, she continues to thrive against all odds.
There is currently no cure for Allie’s disease. While physical therapy can help to maintain the limited muscle use she has, there are currently no treatments that can actually improve her muscle function. There are some very promising research efforts underway in the medical field such as genome editing and precision medicine that could dramatically improve her muscle function. We have faith that one day these research efforts could lead to a breakthrough treatment for Allie. In the meantime, we continue to provide the best life possible for Allie and as a result, Allie is a very happy and sassy 2 year old!