Sep 26
Tuesday, September 26, 2023 4:00 pm - 5:00 pm Registration required

Calling all Nemaline Myopathy (NM) community members! Are you ready to be a driving force in propelling the NM community towards breakthrough treatments? Join our upcoming webinar on September 26th at 7 pm ET (4pm PT) for your chance to discover how YOU can shape the future of NM treatments. Learn about your vital role in engaging policymakers, navigating the FDA process, and accelerating treatment timelines.

Drawing from her extraordinary experiences, guest speaker Jill Anne Castle, a trailblazer from the earliest DMD clinical trials to approval of a groundbreaking gene therapy, will empower us with insights into advancing research. Join esteemed CMD leaders, Rachel Alvarez and Rob Sunris, who’ll share invaluable strategies for engaging policy makers and navigating FDA interactions.

Mark your calendar, as we unite on September 26th to make an impact on the NM community and beyond. Your participation counts – let’s drive change together!