Join the Muscle Disease Registry
Register with the Congenital Muscle Disease International Registry (CMDIR) to help give scientists the data and tools they need to perform necessary and important NM research. Available internationally and open to everyone living anywhere in the world. For additional assistance with registering, fill out this quick Contact Form for personalized guidance and support from the AFBS team.
Sign Up for Citizen Health
Open to US-based affected individuals of any genetic subtype. Both adult self-advocates and parents/caregivers are highly encouraged to sign up. It takes only takes a few moments and Citizen Health handles all the heavy lifting:
• Register Through the Form Below: Sign up in just a few minutes.
• Name Your Care Team: List the doctors and facilities where you received treatment.
• No Hassle: Grant permission for Citizen Health to collect and digitize your records. Your data is completely de-identified to protect your privacy.
You’ll gain FREE access to Citizen Health’s secure Portal. It organizes all your medical records in one spot and includes a built-in AI assistant to search your medical history instantly, prepare for appointments, and easily track your care.