Marc started A Foundation Building Strength in February of 2008 to help his daughter Ava and all patients with Nemaline Myopathy.
Marc is the CEO of Agile Physical Therapy, a company he founded in July of 2002. He is also the director of physical therapy for the Palo Alto Medical Foundation. Marc is on the advisory board for two medical device companies involving technological advances in treatment and rehabilitation of orthopedic and neurologic advances.
Marc is a Board-certified Orthopedic Specialist. His affiliations include: American Physical Therapy Association, National Athletic Training Association, and Orthopedic and Sports Sections of the American Physical Therapy Association. He graduated from Columbia University, New York 1991.
Willie Quinn is a life sciences executive with a passion for making a difference. Mr. Quinn is CFO and SVP Corporate Development at Sunesis Pharmaceuticals (NASDAQ:SNSS), a clinical-stage biopharmaceutical company developing new oncology therapeutics. Previously, he was CEO and co-founder of Bullet Bio, a private company developing cancer immunotherapies based on technology invented at Stanford University. Prior to Bullet Bio, Willie ran Corporate Development for Jazz Pharmaceuticals, a public specialty pharmaceutical company with experience developing and commercializing drugs for orphan indications (indications with fewer than 200,000 patients in the U.S.). Willie joined Jazz Pharmaceuticals in 2003 and actively participated in the creation of their first business plan, working in various functions such as business development, strategy, and finance over his 8 years at the company. Prior to Jazz Pharmaceuticals, Willie was COO and CFO at Novation Biosciences, a venture-backed startup developing software to extract meaningful information from microarray data.
Willie has an MBA from the Stanford Graduate School of Business and an MA and a BA from Stanford University.
Patricia Mitchell’s daughter Kathryn (Katie) Mitchell was diagnosed with Nemaline Myopathy in 2008, at the age of 2. Patricia has her Master’s degree in business from Michigan State University. She currently works for the global health care company Baxter International, as a consultant to sales teams in the areas of finance, sales force effectiveness and commission plan design.
Prior to working for Baxter, Patricia spent 9 years working in consulting. Prior to that, while earning her degrees, she played and coached Division 1 Collegiate volleyball. Patty believes her background in athletics/training, problem solving and now health care have ideally prepared her for work on the board of A Foundation Building Strength. In her spare time Patty teaches religious education to children through St. Joseph’s parish in Libertyville, Illinois, where she currently lives with her family.
Tom is a healthcare innovator, strategist and change agent. He served Pfizer in a number of senior roles including head of strategy for Pfizer’s Biotherapeutics and Bioinnovation Center. There, he initiated innovative efforts spanning business strategy, operational change and clinical development programs.
Prior to Pfizer, Tom held a number of senior strategic advisory positions at Aperion Partners, MTM Advisors, Wood Mackenzie and PA Consulting Group.
Tom is cofounder of BioLogic Technologies, Miragen and most recently Naia Pharmaceuticals. He also cofounded MIT’s NEW Drug Development ParaDIGmS (NEWDIGS) program and still serves on its Executive Committee.
Sharon Fiedler-Shimanovsky held her first fundraiser for AFBS in 2013, a few months after her 7 month old daughter, Liv, was diagnosed with Nemaline Myopathy. She has raised over $300,000 for NM research and is determined to raise more until there is treatment that truly betters the lives of those living with the disease. When Sharon was pregnant with her second son, she was diagnosed with stage III breast cancer, which she beat. Nemaline Myopathy is next.
Prior to becoming a mother, Sharon practiced law at Greenberg Glusker, LLP and subsequently joined her family’s real estate business. She was named one of Los Angeles Magazine’s “super agents” her first year. She earned a B.A. from U.C.L.A. with departmental highest honors and a J.D. from U.C. Davis where she was a law review editor. Her law review article was selected for publication in 1999. She lives in Los Angeles with her husband and three children.
Boris’ daughter, Liv has NM and he plans to change that. Boris has been an executive at multiple startups and currently works as VP of Engineering at Factual, an LA-based location data startup, where he manages a team of approximately 50 engineers.
Boris holds a BS in Physiological Science and an MS in Computer Science, both from UCLA, where he published a paper on hiding data in DNA and also won an award for research involving heart attacks and chaos theory. He put himself through school working night shifts as an ambulance driver. Boris lives in Los Angeles with his badass wife and three amazing children. He is a lousy philosopher, a mediocre poet, and will someday become a great chef.
Lyn Baier’s daughter, Greta, was born in 2008 and was diagnosed with Nemaline Myopathy at 20 months of age. Originally from Iowa, Lyn received her Bachelor’s degree in Music from the University of Northern Iowa and then moved to New York City where she earned her Master’s degree in Student Personnel Administration from New York University. Lyn has worked in Higher Education for over 20 years and currently oversees a first-year seminar program at Rutgers University in New Jersey. Her professional work focuses on connecting first-year student to the university and her passion for encouraging personal connections carries over into her work with the NM community. She enjoys developing relationships with NM families and has hosted five summer gatherings that bring in large numbers of families from around the world. Lyn and her family are committed to hosting NM gatherings during the summers where a formal conference is not held. Lyn lives with her wife, Kate, and daughter, Greta, in New York City. She enjoys the theater whenever possible, loves listening to podcasts and is active in her church.