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Virtual Meetup
You’re Invited! Register now to join the first of our two virtual meetups during Nemaline Myopathy Awareness Month, where members of the NM community can come together to connect,…
Saturday, May 18, 2024 9:00 am – 11:00 am Online -
Virtual Meetup
You’re Invited! Register now to join the second in our series of two virtual meetups during Nemaline Myopathy Awareness Month, where members of the NM community can come together…
Tuesday, May 21, 2024 5:00 pm – 7:00 pm Online -
2024 Nemaline Myopathy Awareness Day
May is Nemaline Myopathy Awareness Month, culminating in the First Annual Nemaline Myopathy Awareness Day on Friday, May 31, 2024! Join us as we come…
Friday, May 31, 2024 Worldwide -
2024 TCS New York City Marathon
Run or Walk 26.2 Miles For Nemaline Myopathy Research We are proud to be selected as an official charity partner of the 2024 TCS New…
Sunday, November 3, 2024 8:00 am – 10:00 am New York, NY