A Foundation Building Strength is a 501(c)(3) nonprofit organization dedicated to finding treatments for rare disease Nemaline Myopathy (NM), while also providing support and resources to the NM community. 

“From the very beginning, our focus has been on understanding Nemaline Myopathy and taking the strategic research steps necessary to find treatments for all those living with Nemaline Myopathy, while supporting our incredible community.”

Marc Guillet, Founder

Our Story

We have a personal history with Nemaline Myopathy. Since 2008, we have been supporting Nemaline Myopathy research to support the entire Nemaline Myopathy community. We are constantly working to improve the lives of those living with Nemaline Myopathy.

With no other organization focused exclusively on Nemaline Myopathy research, our founder realized that increased awareness and investment in groundbreaking research could drastically change lives. Today, our passionate team is driving research forward to make a real difference. Learn more about our mission and vision.

What We Do

We fund research designed to make the most impact in the shortest period of time and with limited resources. With strategic funding, we clear the path so that our scientific experts can focus on their research, making breakthroughs and bringing us closer to life-changing treatments and cures.

Our Impact

With years of experience under our belts, we’re proud to share the stories and stats that demonstrate the progress we’re making toward finding treatments for Nemaline Myopathy.

How You Can Help

We’d love to have you as part of our supporter community and work toward our vision of a stronger tomorrow for people with NM. Explore the various ways to get involved, from volunteering and donating to hosting fundraising events.