A Foundation Building Strength is a 501(c)(3) nonprofit organization dedicated to finding treatments for rare disease Nemaline Myopathy (NM), while also providing support and resources to the NM community.
“From the very beginning, our focus has been on understanding Nemaline Myopathy and taking the strategic research steps necessary to find treatments for all those living with Nemaline Myopathy, while supporting our incredible community.”Marc Guillet, Founder
We have a personal history with Nemaline Myopathy. Since 2008, we have been supporting Nemaline Myopathy research to support the entire Nemaline Myopathy community. We are constantly working to improve the lives of those living with Nemaline Myopathy.
With no other organization focused exclusively on Nemaline Myopathy research, our founder realized that increased awareness and investment in groundbreaking research could drastically change lives. Today, our passionate team is driving research forward to make a real difference. Learn more about our mission and vision.