A Foundation Building Strength

Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Resources & Support

Research

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
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Upcoming Events

  • Dec 2

    Giving Tuesday: 100 Strong Challenge

    This Giving Tuesday, December 2nd, join A Foundation Building Strength for our 3rd annual “100 Strong Challenge” virtual fundraising event! Help us make a powerful…

    Tuesday, December 2, 2025 Online
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Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

About Nemaline Myopathy
Who We Are
Advance Research

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

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On the Blog

Events

Team AFBS NYC Marathon Recap: Building Strength, One Mile at a Time

On Sunday, November 2nd, as tens of thousands of runners took to the streets of New York City, five dedicated athletes wore the AFBS logo with a profound sense of purpose. This was the main event. Our Team AFBS runners—Finley Craig, Leonardo Oliveira, Fernanda Depari Estelles Martins, Aidan Andrews, and Amara Andrews—embarked on the 26.2-mile…

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Research

Announcing Our Newest Research Investments to Accelerate the Path to Treatments

A Foundation Building Strength is thrilled to announce our latest round of newly funded Nemaline Myopathy research projects. After a formal Call for Applications that resulted in several promising proposals, our Scientific Advisory Board, with the help of many experts in their respective fields, completed a robust vetting process. We are proud to announce three…

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