A Foundation Building Strength (AFBS) is excited to share updates showcasing the significant progress being made in research projects enabled by donor support. We are witnessing meaningful advancements in NM therapies, and our efforts to develop treatments and therapies for Nemaline Myopathy (NM) continue to yield promising results. A Refined Mouse Model for NEB-Related NM…
Read MoreAdvancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
Upcoming Events
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Accessible Adventures: Travel Q&A with Cory Lee
A Foundation Building Strength is excited to announce the latest installment of our “Building Strength Together” Webinar Series, designed to provide support, information, and connection…
Saturday, April 26, 2025 12:00 pm – 1:30 pm Online -
Nemaline Myopathy Awareness Month
May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…
Thursday, May 1, 2025 – Saturday, May 31, 2025 Online -
Join the NM Awareness Share-A-Thon!
Celebrate Nemaline Myopathy Awareness Month by participating in AFBS’s NM Awareness Share-A-Thon! Make a Difference, One Share at a Time! This isn’t just a fundraiser;…
Monday, May 26, 2025 – Saturday, May 31, 2025 Online
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
Our Impact
On the Blog
Inside the Nemaline Myopathy Biobank: A Foundation Building Strength Visits Beggs Lab
An Inside Look at the Beggs Lab and a Call to Action for the NM Community Recently, A Foundation Building Strength’s Executive Director, Jen Tozer, had the opportunity to visit the renowned Beggs Lab at Boston Children’s Hospital, home to the groundbreaking AFBS funded Nemaline Myopathy Biobank. From getting a chance to see how these…
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