A Foundation Building Strength

Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Resources & Support

Research

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
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Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

About Nemaline Myopathy
Who We Are
Advance Research

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

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On the Blog

A New Era of Leadership
News

A New Era of Leadership

AFBS Announces Key Board Leadership Appointments A Foundation Building Strength (AFBS) announces important changes to its leadership, marking a new chapter focused on strategic growth and continued dedication to our mission. We are pleased to welcome Leticia Machado as the new President of the Board of Directors and Adrian Gomez as our newest board member….

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Building Strength Together: The NM Community Unites at a Transformative 2025 SciFam!
Events

Building Strength Together: The NM Community Unites at a Transformative 2025 SciFam!

The much-anticipated 2025 SciFam Conference, held from August 1-5 in Philadelphia, has concluded, and AFBS finds itself newly re-energized by the connections made and progress shared! This vital gathering brought together individuals and families affected by NM, Congenital Muscular Dystrophy (CMD), and Titinopathy, alongside a passionate group of clinicians and researchers from around the globe….

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