An Inside Look at the Beggs Lab and a Call to Action for the NM Community Recently, A Foundation Building Strength’s Executive Director, Jen Tozer, had the opportunity to visit the renowned Beggs Lab at Boston Children’s Hospital, home to the groundbreaking AFBS funded Nemaline Myopathy Biobank. From getting a chance to see how these…
Read MoreAdvancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
Upcoming Events
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Accessible Adventures: Travel Q&A with Cory Lee
A Foundation Building Strength is excited to announce the latest installment of our “Building Strength Together” Webinar Series, designed to provide support, information, and connection…
Saturday, April 26, 2025 12:00 pm – 1:30 pm Online -
Nemaline Myopathy Awareness Month
May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…
Thursday, May 1, 2025 – Saturday, May 31, 2025 Online -
Nemaline Myopathy Awareness Day
May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…
Saturday, May 31, 2025 Online
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We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
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On the Blog
Fueling the Future of Nemaline Myopathy: AFBS Launches New Research Grant Opportunity
At A Foundation Building Strength, we’re driven in our unwavering pursuit of treatments for Nemaline Myopathy (NM). Today, we’re excited to announce a significant step forward in that journey: a new series of grants designed to accelerate the development of effective therapies for this rare neuromuscular disorder. This RFA represents a major opportunity for researchers…
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