Your story has the power to shape the future of Nemaline Myopathy research! By completing the AFBS Perspectives and Priorities Survey, you’re not just answering…
Friday, October 31, 2025 OnlineDo you know someone who has gone above and beyond to make a difference in the Nemaline Myopathy community? Here’s your chance to help them…
Friday, October 31, 2025 OnlineCheer On Team AFBS at the New York City Marathon! Cheer on Team AFBS at the New York City Marathon on Sunday, May 2nd! Five…
Sunday, November 2, 2025 New York, NYWe are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
We’re excited to share a vital Nemaline Myopathy research update from the front lines! Dr. Vandana Gupta‘s lab is making significant strides in two crucial areas of Nemaline Myopathy (NM) research: gene therapy for KLHL40-related NM and small molecule drug screening for KLHL41-related NM. These efforts are bringing us closer to understanding and treating this…
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Dreaming of a getaway but wondering about accessible travel? You’re in luck! A Foundation Building Strength (AFBS) recently hosted an incredibly informative webinar, “Accessible Adventures – Travel Q&A with Cory Lee,” as part of our “Building Strength Together” Webinar series. Led by moderator and AFBS board member Lyn Baier, we spoke with renowned accessible travel…
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