Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Upcoming Events

  • Accessible Adventures: Travel Q&A with Cory Lee

    A Foundation Building Strength is excited to announce the latest installment of our “Building Strength Together” Webinar Series, designed to provide support, information, and connection…

    Saturday, April 26, 2025 12:00 pm – 1:30 pm Online
  • Nemaline Myopathy Awareness Month

    May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…

    Thursday, May 1, 2025 – Saturday, May 31, 2025 Online
  • Join the NM Awareness Share-A-Thon!

    Celebrate Nemaline Myopathy Awareness Month by participating in AFBS’s NM Awareness Share-A-Thon! Make a Difference, One Share at a Time! This isn’t just a fundraiser;…

    Monday, May 26, 2025 – Saturday, May 31, 2025 Online
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Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
SEE OUR IMPACT

On the Blog

Research Roundup: Progress and Promise in NM Therapies

Research Roundup: Progress and Promise in NM Therapies

A Foundation Building Strength (AFBS) is excited to share updates showcasing the significant progress being made in research projects enabled by donor support. We are witnessing meaningful advancements in NM therapies, and our efforts to develop treatments and therapies for Nemaline Myopathy (NM) continue to yield promising results. A Refined Mouse Model for NEB-Related NM…

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