Unraveling the Mysteries of Nemaline Myopathy: A Transcontinental Effort The quest to understand and treat Nemaline Myopathy (NM) has taken a significant leap forward, thanks to a powerful collaboration between researchers across the globe. Dr. David Mack and his team at the University of Washington, in partnership with Dr. Joshua Clayton from Prof. Nigel Laing’s…
Read MoreAdvancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
Upcoming Events
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2024 TCS New York City Marathon
Run or Walk 26.2 Miles For Nemaline Myopathy Research We are proud to be selected as an official charity partner of the 2024 TCS New…
Sunday, November 3, 2024 8:00 am – 10:00 am New York, NY -
2025 Scientific and Family Conference – Family Conference
SCIFAM FAMILY CONFERENCE We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA USA! This is a…
Friday, August 1, 2025 – Sunday, August 3, 2025 *Venue To Be Announced*
Philadelphia, PA -
2025 Scientific and Family Conference – Scientific Meeting
SCIFAM SCIENTIFIC MEETING – By Invitation Only We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA…
Monday, August 4, 2025 – Tuesday, August 5, 2025 *Venue to be Announced*
Philadelphia, PA
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
Our Impact
On the Blog
Building Strength Together: Powerful Conversations on Emotional Wellness Kick Off Webinar Series
This past weekend marked the start of something truly special for the NM community. A Foundation Building Strength launched their “Building Strength Together” Webinar Series, a platform designed to foster connection, support, and education for individuals and families navigating the challenges of NM. The first session focused on Emotional Wellness, a critical but often overlooked…
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