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Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
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Upcoming Events
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DEADLINE: AFBS Perspectives & Priorities Survey
Your story has the power to shape the future of Nemaline Myopathy research! By completing the AFBS Perspectives and Priorities Survey, you’re not just answering…
Friday, October 31, 2025 Online -
DEADLINE: NM Awareness Advocacy Honors
Do you know someone who has gone above and beyond to make a difference in the Nemaline Myopathy community? Here’s your chance to help them…
Friday, October 31, 2025 Online -
2025 TCS New York City Marathon
Cheer On Team AFBS at the New York City Marathon! Cheer on Team AFBS at the New York City Marathon on Sunday, November 2nd! Five…
Sunday, November 2, 2025 New York, NY
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
On the Blog
More Than a Race: How One Family is Turning Miles into Hope at the NYC Marathon
On Sunday, November 2nd, Team AFBS’s dedicated runners will be at the starting line of the TCS New York City Marathon. Among them are mother and son Amara and Aidan Andrews. They are each running 26.2 miles to honor Liv Shimanovsky, a 13-year-old born with the rare neuromuscular disease, Nemaline Myopathy (NM). NM causes muscle…
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