A Foundation Building Strength

Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Resources & Support

Research

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
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Join the NM Awareness Share-A-Thon!

As we mark NM Awareness Month, A Foundation Building Strength is launching an exciting new way to amplify our collective voice and accelerate the search for treatments: the NM Awareness Share-A-Thon!

Think of it as a virtual “fun run” where your social media network becomes our fundraising track. Instead of pledging per mile, supporters pledge a small amount for each time our special NM awareness content is shared across Facebook and Instagram May 26th – May31st. It’s a powerful, collaborative effort designed to spread vital information far and wide, while simultaneously generating crucial funds for groundbreaking NM research. Get ready to turn your social reach into real impact!

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FACES OF NM: WHO YOU'RE HELPING!
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Upcoming Events

  • Aug 1 – 3

    2025 Scientific and Family Conference – Family Conference

    SCIFAM FAMILY CONFERENCE We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA USA! This is a…

    Friday, August 1, 2025 – Sunday, August 3, 2025 Hilton Philadelphia at Penn’s Landing
    201 S Christopher Columbus Blvd
    Philadelphia, PA
  • Aug 4 – 5

    2025 Scientific and Family Conference – Scientific Meeting

    SCIFAM SCIENTIFIC MEETING – By Invitation Only We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA…

    Monday, August 4, 2025 – Tuesday, August 5, 2025 Hilton Philadelphia at Penn’s Landing
    201 S Christopher Columbus Blvd.
    Philadelphia, PA
  • Nov 2

    2025 TCS New York City Marathon

    Cheer On Team AFBS at the New York City Marathon! Cheer on Team AFBS at the New York City Marathon on Sunday, May 2nd! Five…

    Sunday, November 2, 2025 New York, NY
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Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

About Nemaline Myopathy
Who We Are
Advance Research

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

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On the Blog

Faces of NM: Liv – Finding Strength in Transition
Community Spotlights

Faces of NM: Liv – Finding Strength in Transition

Meet Liv, a thoughtful and determined 13-year-old navigating the complexities of her teenage years and Nemaline Myopathy (NM) in Los Angeles, California. For those not familiar with Nemaline Myopathy, it’s a rare neuromuscular disease that weakens the muscles throughout the body, including those involved in movement, speech, swallowing, and breathing. The way NM manifests and…

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