Youth Ambassadors

Greta Baier serves as a youth ambassador for A Foundation Building Strength for Nemaline Myopathy.  Greta was diagnosed with NM at 20 months and is affected by the NEB gene.  Some of Greta’s best memories are at NM conferences, summer gatherings her family has hosted, and cheering on the AFBS charity team during the NYC marathon weekend. 

A high schooler in New York City, her favorite subjects are math and science.   Some of her favorite things to do are dance (she dances with Born Dancing, an inclusive dance company), sing, blog (https://gretability.blog/), go to Broadway shows, try out new restaurants in the city, and travel. She also enjoys hanging out with her friends and her Canine Companions service dog, Midas. 

In 2021, Greta was named 1 of 10 middle school finalists in the NPR Student Podcast Challenge where she focused on the importance of inclusive dance.  In the future, she hopes to work in tech and to advocate for people with disabilities.

Ellary serves as a youth ambassador for A Foundation Building Strength for Nemaline Myopathy. Ellary was diagnosed with NM at 1 month of age and is affected by the ACTA-1 gene.

Some of Ellary’s favorite things to do are hang out with friends and family, sing, go swimming and go boating. Her favorite subjects in school are ELA and History. In the future she would like to go to college and work in filmmaking. 

Kate Mitchell serves as a youth ambassador for A Foundation Building Strength for Nemaline Myopathy. Kate was diagnosed with NM at the age of two and is affected by the NEB gene.

In Kate’s free time, she enjoys hanging out with her friends, watching movies and TV shows, baking, and listening to music by artists like Gracie Abrams, Taylor Swift and Dominic Fike. Kate is a senior at a high school in suburban Chicago and enjoys subjects like Latin and Creative Writing. She is actively involved in theatre both in production and through her role as a member of the program’s executive board.

Kate plans to go to college next year and is looking in the Chicago, New York City, and Los Angeles areas. In the future, Kate hopes to work in the film industry, specifically advocating for disabled representation and inclusion.