Ways to Fundraise

Every scientific grant we award, every study we launch, and every breakthrough we pursue is 100% funded by our donors. It’s only through the dedication of supporters like you that A Foundation Building Strength can fuel the critical research bringing us closer to effective treatments and a brighter future for the Nemaline Myopathy community. One of the most powerful ways you can drive this mission forward is by fundraising on behalf of AFBS, turning your voice, passion, and personal network into real scientific progress.

Create Your Own Fundraiser

Follow these simple steps to setup a successful fundraiser for AFBS:

Step 1: Determine How You Want to Raise Funds

Commemorate a birthday or wedding. Have a bake sale or lemonade stand. Host a silent auction. Hold a spin studio fundraiser. Do a 5K or marathon.

The options are endless. Whether your event is big or small, your dedication to finding treatments for Nemaline Myopathy makes all the difference.

Step 2: Set Up Your Fundraising Page

Creating an AFBS fundraising page is fun and easy! To get started, select “Start Fundraising” below. In a few simple steps you can personalize your page with your event details, fundraising goal, a photo and your story.

Step 3: Spread the Word

Once you’ve set up your fundraising page, share it with your friends and family; get everyone you know involved! You’ll receive automatic updates each time someone donates and your team can track your progress online.

Create Your Fundraiser

Participate in These Annual Fundraisers

If you prefer to join an established event rather than build one from scratch, our signature annual campaigns offer a simple, plug-and-play way to make a big impact. Whether you’re lacing up your running shoes for the NYC Marathon, rallying your online network during the NM Awareness Share-A-Thon, or joining forces for our Giving Tuesday 100 Strong initiative, these turnkey events let you plug into a passionate community, raise critical funds, and directly power the search for Nemaline Myopathy treatments.

The NM Awareness Share-A-Thon

Our cornerstone spring fundraising and awareness event, the Annual NM Awareness Share-A-Thon, takes place throughout the month of May and ends on NM Awareness Day. The Share-A-Thon empowers community members to create personal fundraising pages, make direct contributions to research, and share awareness posts across social media.

Thanks to generous matching donors, reaching community social media share goals during the Share-A-Thon unlocks matching gifts that double the impact of every dollar raised for research! Be on the lookout for more information about the Share-A-Thon as May approaches!

Join the AFBS New York City Marathon Team

Every year, an inspiring group of dedicated runners laces up to tackle 26.2 iconic miles through New York City to raise awareness and vital funds for Nemaline Myopathy research.

While charity entry applications for the 2026 TCS New York City Marathon team are now closed, you can get a head start on next year’s race!

Interested in running with us in the future? Sign up for our 2027 Team AFBS Interest List to be the first to know when spots open up!

Giving Tuesday 100 Strong Challenge

Kick off the global day of giving with power and purpose! Held every year on Giving Tuesday, our 100 Strong Challenge marks the official launch of our End of Year Giving campaign. The goal is simple yet impactful: we challenge our community and their networks to rally together and secure 100 individual donations of any size in a single 24-hour period. Every gift, big or small, adds momentum to our mission and directly powers critical Nemaline Myopathy research.

Stay tuned as Giving Tuesday approaches for more details on how you can help us reach our goal!

Contact Us With Your Fundraising Needs!

Kate Emmert, Manager – Communications & Developmentkemmert@buildingstrength.org

If you’re interested in starting a fundraising and would like support, get in touch with Kate to help launch your fundraiser.

Community Fundraising Ideas

Check out some of the incredible fundraisers our community has held in the past to support our mission of finding treatments for Nemaline Myopathy.

Start Fundraising

By becoming a fundraiser for A Foundation Building Strength, you will help all those affected by Nemaline Myopathy, and you’ll change lives.

Get Started