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Virtual NM Youth Gathering (Ages 12 & Under)
Fun & Games! Join AFBS Youth Ambassador Greta Baier for a fun-filled virtual gathering designed for our younger NM community members (ages 12 and under)…
Saturday, March 22, 2025 12:00 pm – 1:30 pm Online -
Nemaline Myopathy Awareness Month
May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…
Thursday, May 1, 2025 – Saturday, May 31, 2025 Online -
Nemaline Myopathy Awareness Day
May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…
Saturday, May 31, 2025 Online -
2025 Scientific and Family Conference – Family Conference
SCIFAM FAMILY CONFERENCE We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA USA! This is a…
Friday, August 1, 2025 – Sunday, August 3, 2025 Hilton Philadelphia at Penn’s Landing
201 S Christopher Columbus Blvd
Philadelphia, PA -
2025 Scientific and Family Conference – Scientific Meeting
SCIFAM SCIENTIFIC MEETING – By Invitation Only We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA…
Monday, August 4, 2025 – Tuesday, August 5, 2025 Hilton Philadelphia at Penn’s Landing
201 S Christopher Columbus Blvd.
Philadelphia, PA -
2025 TCS New York City Marathon
Run or Walk 26.2 Miles For Nemaline Myopathy Research We are proud to be an official charity partner of the 2025 TCS New York City…
Sunday, November 2, 2025 New York, NY