Get Involved

Matching Gifts

Did you know you can double your support for A Foundation Building Strength, without even giving a dollar more? You can if your employer participates in our Matching Gifts Program.

Many corporations match employee donations (or the tax deductible component of your membership) to our organization. If you volunteer with us, your employer may also provide us with a grant as a way to recognize your ongoing support.

Organize a Local Event

The best way to generate community involvement and awareness is to put on an event in your area.  If you’re interested in organizing an awareness or fundraising event, we have lots of resources to assist you.

I Want to Host an Event

Get the Word Out

Nemaline Myopathy is considered to be one of the most devastating childhood muscle diseases but it gets far too little attention.  Spread the word on social media, volunteer at events, and let everyone know that NM is out there and, with scientific research, can be treated.

Get the Word Out

Join the Muscle Disease Registry

CMDIR (Congenital Muscle Disease International Registry) is a registry for families and affected individuals with a congenital myopathy or dystrophy.  Please register and help give scientists the data and tools they need to perform necessary and important research.

Register Now