This past weekend marked the start of something truly special for the NM community. A Foundation Building Strength launched their “Building Strength Together” Webinar Series, a platform designed to foster connection, support, and education for individuals and families navigating the challenges of NM. The first session focused on Emotional Wellness, a critical but often overlooked…
Read MoreAdvancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
Upcoming Events
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2024 TCS New York City Marathon
Run or Walk 26.2 Miles For Nemaline Myopathy Research We are proud to be selected as an official charity partner of the 2024 TCS New…
Sunday, November 3, 2024 8:00 am – 10:00 am New York, NY
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
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On the Blog
Nemaline Myopathy Gene Therapy Research Moves to Next Phase of Pre-Clinical Trials
We’re excited to share some encouraging news on the front lines of Nemaline Myopathy research. Dr. Afrooz Rashnonejad and her team, funded by the support of AFBS, have been making strides in developing a potential gene therapy for NEM3, a form of Nemaline Myopathy caused by mutations in the ACTA1 gene. Nemaline Myopathy Gene Therapy:…
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