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Read MoreAdvancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
Upcoming Events
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Nemaline Myopathy Awareness Month
May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…
Thursday, May 1, 2025 – Saturday, May 31, 2025 Online -
Virtual NM Community Meet-Up
Celebrate Nemaline Myopathy Awareness Month with us! Join AFBS Executive Director Jen Tozer and board members for an engaging virtual NM Community Meet-Up on Sunday,…
Sunday, May 18, 2025 1:00 pm – 2:30 pm Online -
Join the NM Awareness Share-A-Thon!
Celebrate Nemaline Myopathy Awareness Month by participating in AFBS’s NM Awareness Share-A-Thon! Make a Difference, One Share at a Time! This isn’t just a fundraiser;…
Monday, May 26, 2025 – Saturday, May 31, 2025 Online
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
Our Impact
On the Blog
Faces of NM: Meet Audrey, a Texas Star Shining Bright!
Meet Audrey, a vibrant 6-year-old girl from Texas who approaches life with a joyful spirit, even while navigating the challenges of living with Nemaline Myopathy (NM). For those unfamiliar, NM is a rare neuromuscular disease linked to mutations in at least 12 different genes (with NEB and ACTA1 being the most common). It affects the…
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