Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
SEE OUR IMPACT

Join the NM Awareness Share-A-Thon!

As we mark NM Awareness Month, A Foundation Building Strength is launching an exciting new way to amplify our collective voice and accelerate the search for treatments: the NM Awareness Share-A-Thon!

Think of it as a virtual “fun run” where your social media network becomes our fundraising track. Instead of pledging per mile, supporters pledge a small amount for each time our special NM awareness content is shared across Facebook and Instagram May 26th – May31st. It’s a powerful, collaborative effort designed to spread vital information far and wide, while simultaneously generating crucial funds for groundbreaking NM research. Get ready to turn your social reach into real impact!

Upcoming Events

  • 2025 Scientific and Family Conference – Family Conference

    SCIFAM FAMILY CONFERENCE We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA USA! This is a…

    Friday, August 1, 2025 – Sunday, August 3, 2025 Hilton Philadelphia at Penn’s Landing
    201 S Christopher Columbus Blvd
    Philadelphia, PA
  • 2025 Scientific and Family Conference – Scientific Meeting

    SCIFAM SCIENTIFIC MEETING – By Invitation Only We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA…

    Monday, August 4, 2025 – Tuesday, August 5, 2025 Hilton Philadelphia at Penn’s Landing
    201 S Christopher Columbus Blvd.
    Philadelphia, PA
  • 2025 TCS New York City Marathon

    Cheer On Team AFBS at the New York City Marathon! Cheer on Team AFBS at the New York City Marathon on Sunday, May 2nd! Five…

    Sunday, November 2, 2025 New York, NY
View All Upcoming Events ›

Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

On the Blog

Your Passport to Adventure: Recap of “Accessible Adventures” with Cory Lee

Your Passport to Adventure: Recap of “Accessible Adventures” with Cory Lee

Dreaming of a getaway but wondering about accessible travel? You’re in luck! A Foundation Building Strength (AFBS) recently hosted an incredibly informative webinar, “Accessible Adventures – Travel Q&A with Cory Lee,” as part of our “Building Strength Together” Webinar series. Led by moderator and AFBS board member Lyn Baier, we spoke with renowned accessible travel…

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NM Awareness Month Recap: Our Impactful May!

NM Awareness Month Recap: Our Impactful May!

A Foundation Building Strength (AFBS) is absolutely thrilled to present our NM Awareness Month Recap and look back on a truly impactful May! For families and individuals touched by this rare neuromuscular disease, awareness is deeply personal – it’s about sharing our stories, speeding up research, and ultimately, building a path toward effective treatments. Our…

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