Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Upcoming Events

  • 2024 TCS New York City Marathon

    Run or Walk 26.2 Miles For Nemaline Myopathy Research We are proud to be selected as an official charity partner of the 2024 TCS New…

    Sunday, November 3, 2024 8:00 am - 10:00 am New York, NY
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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness. 

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this. Learn More.

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
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On the Blog

FACES OF NM: Harneet Sandhu is Navigating Nemaline Myopathy with Resilience and Advocacy

FACES OF NM: Harneet Sandhu is Navigating Nemaline Myopathy with Resilience and Advocacy

Early Signs, Diagnosis, and Medical Complexities Harneet Sandhu’s journey with Nemaline Myopathy (NM) began with early signs noticed by her mother when she was just three years old. “When I would fall while walking, I wouldn’t stand back up,” she recalls. Concerned, her mother sought medical advice, leading to a pivotal diagnosis of a muscular…

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