A Foundation Building Strength (AFBS) is excited to support smaller, regional gatherings for NM families to stay connected around the world.
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Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
Upcoming Events
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Webinar: Tools Used to Study the Spectrum of Nemaline Myopathy
Join us for the next webinar in the series, “Amplifying the NM Community’s Voice”. This webinar will focus on the tools used to study the…
Saturday, April 1, 2023 10:00 am Zoom Webinar: Advanced registration required -
A Weekend of Building Strength
Join Us This Spring! You’re invited to participate in the annual A Weekend of Building Strength.
Friday, April 28, 2023 - Sunday, April 30, 2023 Worldwide
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
Our Impact
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of your donation is invested in Nemaline Myopathy research
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research studies funded to date
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people with Nemaline Myopathy registered in CMDIR
On the Blog
Community Spotlight: Lucinda
This “Community Spotlight” series highlights and celebrates our unique and wonderful NM community members. The Q&A will give a peek into the lives of individuals living with NM and the diversity they represent.
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