A Foundation Building Strength

Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

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We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

About Nemaline Myopathy
Who We Are
Advance Research

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

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Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
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On the Blog

News

On the Road to Treatment: A Foundation Building Strength’s 2025 Itinerary

Thanks to the ongoing support of our donors, AFBS continued to make incredible progress on the road to treatment for Nemaline Myopathy in 2024. As we kick off 2025, we’re excited to share our itinerary for the year ahead – and it’s filled with promising milestones! HERE’S WHAT’S ON THE HORIZON: NAVIGATING THE ROAD AHEAD…

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News

2024: A Year of Progress on the Road to Treatments for Nemaline Myopathy

What a year it’s been! As 2024 comes to a close, we’re taking a moment to celebrate the incredible strides we’ve made together on the road to find treatments Nemaline Myopathy. From research breakthroughs to community building, it’s been a year of milestones and achievements. We invite you to join us in reflecting on the…

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