Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Upcoming Events

  • Double Your Impact this Giving Season!

    Support A Foundation Building Strength (AFBS) in our mission to find treatments and therapies for Nemaline Myopathy (NM). From Giving Tuesday (December 3rd) through December…

    Tuesday, December 3, 2024 – Tuesday, December 31, 2024 Online
    Worldwide
  • 2025 Scientific and Family Conference – Family Conference

    SCIFAM FAMILY CONFERENCE We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA USA! This is a…

    Friday, August 1, 2025 – Sunday, August 3, 2025 *Venue To Be Announced*
    Philadelphia, PA
  • 2025 Scientific and Family Conference – Scientific Meeting

    SCIFAM SCIENTIFIC MEETING – By Invitation Only We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA…

    Monday, August 4, 2025 – Tuesday, August 5, 2025 *Venue to be Announced*
    Philadelphia, PA
View All Upcoming Events ›

Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
SEE OUR IMPACT

On the Blog

Nemaline Myopathy Community Celebrates Team AFBS at the New York City Marathon

Nemaline Myopathy Community Celebrates Team AFBS at the New York City Marathon

This past weekend, Nemaline Myopathy community members of the New York area and our board members came together to cheer on Team AFBS as our five amazing runners tackled the iconic New York City Marathon. In addition to spending months training and bringing awareness to Nemaline Myopathy (NM), these generous marathoners raised over $30,000 for…

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International Collaboration Drives New Discoveries in Nemaline Myopathy Research

International Collaboration Drives New Discoveries in Nemaline Myopathy Research

Unraveling the Mysteries of Nemaline Myopathy: A Transcontinental Effort The quest to understand and treat Nemaline Myopathy (NM) has taken a significant leap forward, thanks to a powerful collaboration between researchers across the globe. Dr. David Mack and his team at the University of Washington, in partnership with Dr. Joshua Clayton from Prof. Nigel Laing’s…

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