A Foundation Building Strength

Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Resources & Support

Research

Upcoming Events

  • Mar 22

    Virtual NM Youth Gathering (Ages 12 & Under)

    Fun & Games! Join AFBS Youth Ambassador Greta Baier for a fun-filled virtual gathering designed for our younger NM community members (ages 12 and under)…

    Saturday, March 22, 2025 12:00 pm – 1:30 pm Online
  • May 1 – 31

    Nemaline Myopathy Awareness Month

    May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…

    Thursday, May 1, 2025 – Saturday, May 31, 2025 Online
  • May 31

    Nemaline Myopathy Awareness Day

    May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…

    Saturday, May 31, 2025 Online
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Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

About Nemaline Myopathy
Who We Are
Advance Research

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

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Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
SEE OUR IMPACT

On the Blog

Fueling the Future of Nemaline Myopathy: AFBS Launches New Research Grant Opportunity
News

Fueling the Future of Nemaline Myopathy: AFBS Launches New Research Grant Opportunity

At A Foundation Building Strength, we’re driven in our unwavering pursuit of treatments for Nemaline Myopathy (NM). Today, we’re excited to announce a significant step forward in that journey: a new series of grants designed to accelerate the development of effective therapies for this rare neuromuscular disorder. This RFA represents a major opportunity for researchers…

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