On Sunday, November 2nd, as tens of thousands of runners took to the streets of New York City, five dedicated athletes wore the AFBS logo with a profound sense of purpose. This was the main event. Our Team AFBS runners—Finley Craig, Leonardo Oliveira, Fernanda Depari Estelles Martins, Aidan Andrews, and Amara Andrews—embarked on the 26.2-mile…
Read MoreAdvancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
Our Impact
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Upcoming Events
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AFBS Virtual Teen & Young Adult Gathering
Join us for a relaxing, virtual gathering designed exclusively for teens and young adults (Ages 13 +) affected by Nemaline Myopathy (NM). Hosted by AFBS…
Saturday, December 6, 2025 9:00 am – 11:00 am Online -
AFBS $100,000 Challenge: Deadline to Double Your Impact
Join us in the final hours of our most critical fundraising initiative of the year! The AFBS $100,000 Challenge ends at midnight on Wednesday, December…
Wednesday, December 31, 2025 11:59 pm Online -
AFBS Kids Gathering (Ages 12 & Under)
Kick off the new year with friends! Join A Foundation Building Strength (AFBS) for a special virtual gathering designed just for kids ages 12 and…
Saturday, January 3, 2026 9:00 am – 10:30 am Online
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
On the Blog
Announcing Our Newest Research Investments to Accelerate the Path to Treatments
A Foundation Building Strength is thrilled to announce our latest round of newly funded Nemaline Myopathy research projects. After a formal Call for Applications that resulted in several promising proposals, our Scientific Advisory Board, with the help of many experts in their respective fields, completed a robust vetting process. We are proud to announce three…
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