As we mark NM Awareness Month, A Foundation Building Strength is launching an exciting new way to amplify our collective voice and accelerate the search for treatments: the NM Awareness Share-A-Thon!
Think of it as a virtual “fun run” where your social media network becomes our fundraising track. Instead of pledging per mile, supporters pledge a small amount for each time our special NM awareness content is shared across Facebook and Instagram May 26th – May31st. It’s a powerful, collaborative effort designed to spread vital information far and wide, while simultaneously generating crucial funds for groundbreaking NM research. Get ready to turn your social reach into real impact!
SCIFAM FAMILY CONFERENCE We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA USA! This is a…
Friday, August 1, 2025 – Sunday, August 3, 2025 Hilton Philadelphia at Penn’s LandingSCIFAM SCIENTIFIC MEETING – By Invitation Only We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA…
Monday, August 4, 2025 – Tuesday, August 5, 2025 Hilton Philadelphia at Penn’s LandingCheer On Team AFBS at the New York City Marathon! Cheer on Team AFBS at the New York City Marathon on Sunday, May 2nd! Five…
Sunday, November 2, 2025 New York, NYWe are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
Dreaming of a getaway but wondering about accessible travel? You’re in luck! A Foundation Building Strength (AFBS) recently hosted an incredibly informative webinar, “Accessible Adventures – Travel Q&A with Cory Lee,” as part of our “Building Strength Together” Webinar series. Led by moderator and AFBS board member Lyn Baier, we spoke with renowned accessible travel…
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A Foundation Building Strength (AFBS) is absolutely thrilled to present our NM Awareness Month Recap and look back on a truly impactful May! For families and individuals touched by this rare neuromuscular disease, awareness is deeply personal – it’s about sharing our stories, speeding up research, and ultimately, building a path toward effective treatments. Our…
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