A Foundation Building Strength

Funding breakthrough Nemaline Myopathy research. Supporting and Connecting the affected community.

Research

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Our Story

In 2008, a diagnosis of Nemaline Myopathy (NM) led one family to ask a critical question: “What can we do to help?”
That question led to establishing A Foundation Building Strength (AFBS) as a globally respected organization with an unflinching mission to find effective treatments for this genetic disorder that causes weakness in the skeletal muscles, affecting the ability to move, talk, swallow, and breathe.
By uniting leading scientists, clinicians, and determined families, AFBS has built the essential pillars of research—including registries, tissue repositories, animal models, and natural history studies—needed to find effective treatments.
Now, we are doubling down on our efforts to move from basic science to life-changing therapies. But we cannot do it alone.

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Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
SEE OUR IMPACT

Upcoming Events

  • Nov 1

    2026 TCS New York City Marathon

    Cheer on Team AFBS at the New York City Marathon on Sunday, November 1st! Eleven dedicated runners are taking on the incredible challenge of 26.2…

    Sunday, November 1, 2026 8:00 am – 10:00 pm New York City
    New York, NY
  • Nov 14

    AFBS VIRTUAL KIDS GATHERING – AGES 12 & UNDER

    Join A Foundation Building Strength (AFBS) for a special virtual gathering designed just for kids ages 12 and under who are affected by Nemaline Myopathy (NM). Hosted by AFBS…

    Saturday, November 14, 2026 9:00 am Online
  • Nov 14

    AFBS RESEARCH UPDATE WEBINAR: FALL 2026

    Join A Foundation Building Strength (AFBS) for our Fall 2026 Research Update. This webinar will feature the latest scientific developments and progress in research for…

    Saturday, November 14, 2026 9:00 am – 10:30 am Online
View All Upcoming Events ›

Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

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About Nemaline Myopathy

Latest News

Engineered for Impact: Meet Adelaide McCarter
Events

Engineered for Impact: Meet Adelaide McCarter

When Adelaide McCarter laces up her running shoes along the breezy Chicago lakefront, she brings a unique perspective to every stride. As a 21-year-old senior studying biomedical engineering at Northwestern University and working part-time as a medical assistant, she spends her days immersed in the mechanics of human physiology and the realities of patient care….

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From the Rockies to the Five Boroughs: Meet Cecilia Quinones
Events

From the Rockies to the Five Boroughs: Meet Cecilia Quinones

Cecilia Quinones discovered her love for endurance on the dirt trails of Lake Tahoe during her junior year of high school. What began as a spontaneous outdoor challenge quickly turned into a lifelong pursuit. Since moving from San Francisco to attend the University of Colorado Boulder, surrounded by the Flatirons and an elite running culture,…

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