Support A Foundation Building Strength (AFBS) in our mission to find treatments and therapies for Nemaline Myopathy (NM). From Giving Tuesday (December 3rd) through December…
Tuesday, December 3, 2024 – Tuesday, December 31, 2024 OnlineSCIFAM FAMILY CONFERENCE We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA USA! This is a…
Friday, August 1, 2025 – Sunday, August 3, 2025 *Venue To Be Announced*SCIFAM SCIENTIFIC MEETING – By Invitation Only We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA…
Monday, August 4, 2025 – Tuesday, August 5, 2025 *Venue to be Announced*We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
This past weekend, Nemaline Myopathy community members of the New York area and our board members came together to cheer on Team AFBS as our five amazing runners tackled the iconic New York City Marathon. In addition to spending months training and bringing awareness to Nemaline Myopathy (NM), these generous marathoners raised over $30,000 for…
Read More
Unraveling the Mysteries of Nemaline Myopathy: A Transcontinental Effort The quest to understand and treat Nemaline Myopathy (NM) has taken a significant leap forward, thanks to a powerful collaboration between researchers across the globe. Dr. David Mack and his team at the University of Washington, in partnership with Dr. Joshua Clayton from Prof. Nigel Laing’s…
Read More
