A Foundation Building Strength

Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Resources & Support

Research

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
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Upcoming Events

  • Mar 7

    AFBS Virtual Kids Gathering (Ages 12 & Under)

    Join A Foundation Building Strength (AFBS) for a special virtual gathering designed just for kids ages 12 and under who are affected by Nemaline Myopathy…

    Saturday, March 7, 2026 9:00 am – 10:30 am Online
  • Apr 4

    AFBS Teen & Young Adult Virtual Gathering

    Join us for a relaxing, virtual gathering designed exclusively for teens and young adults (Ages 13 +) affected by Nemaline Myopathy (NM). Hosted by AFBS…

    Saturday, April 4, 2026 9:00 am – 10:30 am Online
View All Upcoming Events ›

Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

About Nemaline Myopathy
Who We Are
Advance Research

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

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On the Blog

Announcement: New Landmark Research Partnership with AFBS & DNA Nanobots
Research

Announcement: New Landmark Research Partnership with AFBS & DNA Nanobots

Announcing a significant milestone in our mission to find treatments for Nemaline Myopathy (NM)! As part of our latest round of research grants, A Foundation Building Strength (AFBS) is officially teaming up with DNA Nanobots, marking our first-ever research partnership with a private biotechnology company. This collaboration represents a bold step forward in diversifying our…

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Sunshine and Grit: The Unstoppable Force of Kaitlyn and Jackson Schara
News

Sunshine and Grit: The Unstoppable Force of Kaitlyn and Jackson Schara

Announcing the inaugural recipient of the AFBS “Strength in Action” Award. If you scroll through social media, you might stumble upon a video of a toddler with mischief in his eyes and an infectious smile, perhaps insisting–with the vocabulary of a child twice his age– that he needs to go to Waffle House. This is…

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