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Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
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Upcoming Events
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NEMALINE MYOPATHY AWARENESS MONTH
May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…
Friday, May 1, 2026 – Sunday, May 31, 2026 Online -
VIRTUAL KIDS GATHERING – AGES 12 & UNDER
Join A Foundation Building Strength (AFBS) for a special virtual gathering designed just for kids ages 12 and under who are affected by Nemaline Myopathy (NM). Hosted by AFBS…
Saturday, May 9, 2026 9:00 am – 10:30 am Online -
NM AWARENESS SHARE-A-THON
The NM Awareness Share-A-Thon is an online fundraising event designed to spread awareness about the rare neuromuscular disease Nemaline Myopathy across social media, while simultaneously…
Monday, May 18, 2026 – Sunday, May 31, 2026 Online
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
On the Blog
AFBS Research Update: Breakthrough Progress in the Search for Effective Nemaline Myopathy Treatments
At A Foundation Building Strength (AFBS), our mission is fueled by a commitment to world-class science. We’re thrilled to share a significant update from the lab of Dr. Vandana Gupta, part of our current 3-year, $3.6 million research investment Dr. Gupta’s work is focused on some of the rarest forms of Nemaline Myopathy (NM), specifically…
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