Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Upcoming Events

  • Regional Gathering: Palo Alto, California

    AFBS supports smaller, regional gatherings for Nemaline Myopathy community members to stay connected around the world.  This event is a simple way to connect with…

    Saturday, June 10, 2023 Nemaline Myopathy Regional Gathering
    Palo Alto, CA
  • Regional Gathering: São Paulo, Brazil 

    AFBS supports smaller, regional gatherings for Nemaline Myopathy community members to stay connected around the world.  This event is a simple way to connect with…

    Wednesday, June 14, 2023 Nemaline Myopathy Regional Gathering
    Brazil
  • Regional Gathering: Asheville, NC

    AFBS supports smaller, regional gatherings for Nemaline Myopathy community members to stay connected around the world.  This event is a simple way to connect with…

    Saturday, June 17, 2023 Nemaline Myopathy Regional Gathering
    Asheville, NC
View All Upcoming Events ›

FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
SEE OUR IMPACT

On the Blog

Developing NM Community Priorities: Listening to YOU

In the latest webinar of the series, “Amplifying the NM Community’s Voice”, we were joined by peers and Nemaline Myopathy (NM) experts to better understand challenges and opportunities related to NM, identifying priorities and ultimately advancing research. Watch the full webinar to hear all the insight, announcements and feedback from peers and clinicians: NM Natural…

Read More
Check Out More Blog Posts