A Foundation Building Strength (AFBS) proudly announces a significant expansion of its Nemaline Myopathy (NM) research efforts through the launch of the Beggs Laboratory NM Biobanking Program at Boston Children’s Hospital. This groundbreaking initiative builds upon the existing AFBS-sponsored NM Tissue Repository and aims to revolutionize our understanding of NM, forging a path toward new…
Read MoreAdvancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
Upcoming Events
-
2024 TCS New York City Marathon
Run or Walk 26.2 Miles For Nemaline Myopathy Research We are proud to be selected as an official charity partner of the 2024 TCS New…
Sunday, November 3, 2024 8:00 am - 10:00 am New York, NY
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
You Can Make A Difference
Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.
NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this. Learn More.
Our Impact
On the Blog
Faces of NM: Enilton Neymakes Morais – A Polyglot Globetrotter with Nemaline Myopathy
A Diagnosis, A Fear, A New Path Enilton Neymakes Morais isn’t letting Nemaline Myopathy (NM) clip his wings. The 35-year-old Brazilian from Valente-Bahia speaks five languages and dreams of traveling the world, a testament to his adventurous spirit. His diagnosis came through a muscle biopsy, and it was met with a heavy dose of fear….
Read More