A Foundation Building Strength

Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Resources & Support

Research

Upcoming Events

  • Nov 3

    2024 TCS New York City Marathon

    Run or Walk 26.2 Miles For Nemaline Myopathy Research We are proud to be selected as an official charity partner of the 2024 TCS New…

    Sunday, November 3, 2024 8:00 am – 10:00 am New York, NY
  • Aug 1 – 3

    2025 Scientific and Family Conference – Family Conference

    SCIFAM FAMILY CONFERENCE We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA USA! This is a…

    Friday, August 1, 2025 – Sunday, August 3, 2025 *Venue To Be Announced*
    Philadelphia, PA
  • Aug 4 – 5

    2025 Scientific and Family Conference – Scientific Meeting

    SCIFAM SCIENTIFIC MEETING – By Invitation Only We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA…

    Monday, August 4, 2025 – Tuesday, August 5, 2025 *Venue to be Announced*
    Philadelphia, PA
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Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

About Nemaline Myopathy
Who We Are
Advance Research

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

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Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
SEE OUR IMPACT

On the Blog

International Collaboration Drives New Discoveries in Nemaline Myopathy Research
Research

International Collaboration Drives New Discoveries in Nemaline Myopathy Research

Unraveling the Mysteries of Nemaline Myopathy: A Transcontinental Effort The quest to understand and treat Nemaline Myopathy (NM) has taken a significant leap forward, thanks to a powerful collaboration between researchers across the globe. Dr. David Mack and his team at the University of Washington, in partnership with Dr. Joshua Clayton from Prof. Nigel Laing’s…

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Building Strength Together: Powerful Conversations on Emotional Wellness Kick Off Webinar Series
Events

Building Strength Together: Powerful Conversations on Emotional Wellness Kick Off Webinar Series

This past weekend marked the start of something truly special for the NM community. A Foundation Building Strength launched their “Building Strength Together” Webinar Series, a platform designed to foster connection, support, and education for individuals and families navigating the challenges of NM. The first session focused on Emotional Wellness, a critical but often overlooked…

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