In the latest webinar of the series, “Amplifying the NM Community’s Voice”, we were joined by peers and Nemaline Myopathy (NM) experts to better understand challenges and opportunities related to NM, identifying priorities and ultimately advancing research. Watch the full webinar to hear all the insight, announcements and feedback from peers and clinicians: NM Natural…
Read MoreAdvancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
Upcoming Events
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Regional Gathering: Palo Alto, California
AFBS supports smaller, regional gatherings for Nemaline Myopathy community members to stay connected around the world. This event is a simple way to connect with…
Saturday, June 10, 2023 Nemaline Myopathy Regional Gathering
Palo Alto, CA -
Regional Gathering: São Paulo, Brazil
AFBS supports smaller, regional gatherings for Nemaline Myopathy community members to stay connected around the world. This event is a simple way to connect with…
Wednesday, June 14, 2023 Nemaline Myopathy Regional Gathering
Brazil -
Regional Gathering: Asheville, NC
AFBS supports smaller, regional gatherings for Nemaline Myopathy community members to stay connected around the world. This event is a simple way to connect with…
Saturday, June 17, 2023 Nemaline Myopathy Regional Gathering
Asheville, NC
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
Our Impact
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On the Blog
InstaNM: A New Series Highlighting Adaptations to Navigate a World with Nemaline Myopathy
Join us as we take a peek into the lives of community members of all ages and from all walks of life as they show us how they’ve adapted to navigate their world with Nemaline Myopathy. First up, hit the ope road with Lucinda and her adapted driving vehicle.
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