A Foundation Building Strength

Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

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Research

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
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Upcoming Events

  • Aug 1 – 3

    2025 Scientific and Family Conference – Family Conference

    SCIFAM FAMILY CONFERENCE We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA USA! This is a…

    Friday, August 1, 2025 – Sunday, August 3, 2025 Hilton Philadelphia at Penn’s Landing
    201 S Christopher Columbus Blvd
    Philadelphia, PA
  • Aug 4 – 5

    2025 Scientific and Family Conference – Scientific Meeting

    SCIFAM SCIENTIFIC MEETING – By Invitation Only We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA…

    Monday, August 4, 2025 – Tuesday, August 5, 2025 Hilton Philadelphia at Penn’s Landing
    201 S Christopher Columbus Blvd.
    Philadelphia, PA
  • Nov 2

    2025 TCS New York City Marathon

    Cheer On Team AFBS at the New York City Marathon! Cheer on Team AFBS at the New York City Marathon on Sunday, May 2nd! Five…

    Sunday, November 2, 2025 New York, NY
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Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

About Nemaline Myopathy
Who We Are
Advance Research

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

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On the Blog

Advancing Nemaline Myopathy Research: An Update from Dr. Vandana Gupta’s Lab
Research

Advancing Nemaline Myopathy Research: An Update from Dr. Vandana Gupta’s Lab

We’re excited to share a vital Nemaline Myopathy research update from the front lines! Dr. Vandana Gupta‘s lab is making significant strides in two crucial areas of Nemaline Myopathy (NM) research: gene therapy for KLHL40-related NM and small molecule drug screening for KLHL41-related NM. These efforts are bringing us closer to understanding and treating this…

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Your Passport to Adventure: Recap of “Accessible Adventures” with Cory Lee
News

Your Passport to Adventure: Recap of “Accessible Adventures” with Cory Lee

Dreaming of a getaway but wondering about accessible travel? You’re in luck! A Foundation Building Strength (AFBS) recently hosted an incredibly informative webinar, “Accessible Adventures – Travel Q&A with Cory Lee,” as part of our “Building Strength Together” Webinar series. Led by moderator and AFBS board member Lyn Baier, we spoke with renowned accessible travel…

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