A Foundation Building Strength

Funding breakthrough Nemaline Myopathy research. Supporting and Connecting the affected community.

Research

Get Involved

Our Story

In 2008, a diagnosis of Nemaline Myopathy (NM) led one family to ask a critical question: “What can we do to help?”
That question led to establishing A Foundation Building Strength (AFBS) as a globally respected organization with an unflinching mission to find effective treatments for this genetic disorder that causes weakness in the skeletal muscles, affecting the ability to move, talk, swallow, and breathe.
By uniting leading scientists, clinicians, and determined families, AFBS has built the essential pillars of research—including registries, tissue repositories, animal models, and natural history studies—needed to find effective treatments.
Now, we are doubling down on our efforts to move from basic science to life-changing therapies. But we cannot do it alone.

Learn More

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
SEE OUR IMPACT

Upcoming Events

  • Nov 14

    AFBS VIRTUAL KIDS GATHERING – AGES 12 & UNDER

    Join A Foundation Building Strength (AFBS) for a special virtual gathering designed just for kids ages 12 and under who are affected by Nemaline Myopathy (NM). Hosted by AFBS…

    Saturday, November 14, 2026 9:00 am Online
  • Nov 14

    AFBS RESEARCH UPDATE WEBINAR: FALL 2026

    Join A Foundation Building Strength (AFBS) for our Fall 2026 Research Update. This webinar will feature the latest scientific developments and progress in research for…

    Saturday, November 14, 2026 9:00 am – 10:30 am Online
  • Nov 14

    RESEARCH UPDATE WEBINAR: FALL 2026

    Get a front-row seat to the research we’re building together! Join us on Saturday, November 14th for A Foundation Building Strength’s Research Update: Fall 2026,…

    Saturday, November 14, 2026 9:00 am – 10:30 am Online
View All Upcoming Events ›

Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

Learn More

FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

Participate in Research
Who We Are
About Nemaline Myopathy

Latest News

Strength in Every Stride: Recapping NYC Marathon Weekend with Team AFBS
Events

Strength in Every Stride: Recapping NYC Marathon Weekend with Team AFBS

There is an undeniable energy across New York City on marathon morning, with crowds lining the avenues and the entire city coming alive for 26.2 miles. For our Nemaline Myopathy (NM) community, this year’s race was a landmark celebration. Twelve dedicated athletes stepped up to the starting line on Staten Island, navigated the five boroughs,…

Read More