From the Rockies to the Five Boroughs: Meet Cecilia Quinones

From the Rockies to the Five Boroughs: Meet Cecilia Quinones

Cecilia Quinones discovered her love for endurance on the dirt trails of Lake Tahoe during her junior year of high school. What began as a spontaneous outdoor challenge quickly turned into a lifelong pursuit. Since moving from San Francisco to attend the University of Colorado Boulder, surrounded by the Flatirons and an elite running culture,…

Read More
A Marathon, Not a Sprint: Former Pro Athlete Alexander Lundskog runs 26.2 Miles for Nemaline Myopathy

A Marathon, Not a Sprint: Former Pro Athlete Alexander Lundskog runs 26.2 Miles for Nemaline Myopathy

For a decade, Alexander Lundskog measured his athletic life in two furious laps around a track. Representing Sweden on the professional circuit, the Gothenburg native specialized in the 800 meters, an event built on razor-thin anaerobic margins, lactic acid tolerance, and explosive, sustained speed. He stepped away from professional running two years ago, having pushed…

Read More
Redefining the Finish Line: Meet Eric Tozer

Redefining the Finish Line: Meet Eric Tozer

Eric Tozer is no stranger to the outer edges of human endurance. After being diagnosed with Type 1 diabetes in 2006, the now-42 year-old from San Diego turned to long-distance sports, conquering multiple Ironman triathlons and running across the United States in a 15-day relay. In 2019, he tackled the World Marathon Challenge, becoming the…

Read More
Miles with Meaning: Meet Lucas Ross

Miles with Meaning: Meet Lucas Ross

For Lucas Ross, athletic challenges have always been part of life. Growing up in Palo Alto, California, he spent years on the move playing competitive lacrosse and basketball, later testing his endurance with casual distance runs, a 10K, and a half marathon. But as he entered his senior year at Southern Methodist University (SMU) in…

Read More
Elevating Patient & Caregiver Voices: New Multinational Study Publication Sheds Light on Nemaline Myopathy

Elevating Patient & Caregiver Voices: New Multinational Study Publication Sheds Light on Nemaline Myopathy

In rare disease research, data only tells part of the story until it includes the lived experiences of those who navigate the condition every day. That vision took a leap forward with the publication of “Nemaline Myopathy Patient and Caregiver Perspectives: A Multinational Cross-Sectional Study” in Neuromuscular Disorders. Made possible through research funding from A…

Read More
Sunrises, Mountain Trails, and 26.2 Miles for NM: Meet Tiffany Hotchkiss

Sunrises, Mountain Trails, and 26.2 Miles for NM: Meet Tiffany Hotchkiss

For Tiffany Hotchkiss, running has long been an anchor in a full, fast-moving life. Long training blocks mean fitting high mileage around a full-time career, regular travel, and everyday family routines. Yet whether she is logging early miles before the workday begins or chasing the fading light at dusk, she finds clarity in the rhythm…

Read More
A Cousin’s Promise: Meet Taylor Lantz

A Cousin’s Promise: Meet Taylor Lantz

When Taylor Lantz laces up her running shoes before dawn on Saturday mornings, she takes the subway all the way uptown to West 168th Street, meets her closest friends, and runs the entire length of Manhattan back down to East 3rd. It is an ambitious route through the city she now calls home, but on…

Read More
Team AFBS NYC Marathon Recap: Building Strength, One Mile at a Time

Team AFBS NYC Marathon Recap: Building Strength, One Mile at a Time

On Sunday, November 2nd, as tens of thousands of runners took to the streets of New York City, five dedicated athletes wore the AFBS logo with a profound sense of purpose. This was the main event. Our Team AFBS runners—Finley Craig, Leonardo Oliveira, Fernanda Depari Estelles Martins, Aidan Andrews, and Amara Andrews—embarked on the 26.2-mile…

Read More
A Runner’s Meditation: Leonardo Oliveira’s 26.2 Mile Mission

A Runner’s Meditation: Leonardo Oliveira’s 26.2 Mile Mission

For Leonardo Oliveira, running isn’t just exercise; it’s a way of life. “Running has been my favorite activity for 20+ years,” he shares. “It’s meditation to me, where I balance out the stress and generate ideas.” This November, the 45-year-old from São Paulo, Brazil, is bringing that meditative focus to his third marathon—the TCS New…

Read More