Blog

Why Genetic Confirmation Matters for Treatment

The fifth webinar in the series, “Amplifying the NM Community’s Voice”, focuses on why genetic confirmation matters for treatments. Featured speakers...

NYC Gathering Celebrates NM Families and Marathon Runners

Supporters, friends, AFBS Board Members and NM families joined together on November 5, 2022 in New York City to celebrate our...

Pathway to a Natural History Study for Nemaline Myopathy

The fourth webinar in the series, “Amplifying the NM Community’s Voice”, focuses on the pathway to a Natural History Study for...

Research Progress: Dr. Dowling’s CRISPR/Cas9 Project

A few years ago, AFBS funded a very ambitious project by Dr. Jim Dowling (SickkidsChildren’s Hospital, Canada) exploring the potential application...

SciFam Welcomes NM Families & Researchers

The Nemaline Myopathy community joined together in person and virtually for the 2022 SciFam Conference this summer in Nashville, Tennessee, for...

Research Fundamentals, Part 2 Webinar

The third webinar in the series, “Amplifying the NM Community Voice”, focuses on Part 2 of Research Fundamentals. Resources Included: Toolkit...

Research Fundamentals Webinar

The second webinar in the series, “Amplifying the NM Community Voice”, focuses on Research Fundamentals. The webinar includes defining PCOR (Patient...

A New Webinar Series: Amplifying the NM Community’s Voice

AFBS’ Youth Ambassador shares a brief summary of the first webinar in the series, “Amplifying the NM Community’s Voice”. The webinar...

A Foundation Building Strength Receives Two Significant, Multi-Year Awards for Capacity-Building and Network-Building

PCORI and CZI awards lay foundation for game-changing growth and research momentum for Nemaline Myopathy

RESEARCH PROGRESS: A YEAR IN REVIEW

With limited resources and low interest for rare diseases, research funded by A Foundation Building Strength (AFBS) is designed to make...