We support smaller, regional gatherings for NM community members to stay connected around the world. 

Stay tuned for more information about upcoming 2024 gatherings!

These events are a simple way to connect with families and individuals with NM, learn about current care and research, and stay active in the NM community.

Recent Gatherings

We hope you were able to join us at one of our recent family gatherings!

Asheville, North Carolina

June 17, 2023
Host: Stacy Cossette

São Paulo, Brazil

June 14, 2023
Virtual Gathering in Portuguese
Host: Leticia Machado

Palo Alto, California

June 10, 2023
Host: Marc Guillet

Malmö, Sweden

June 17, 2023
Host: Anna Hallgren and Johanna Dahl

New York City, New York

August 5, 2023
Host: Lyn Baier

Dayton, Ohio

July 9, 2023
Host: Ali Reed

This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award #EACB-23111.

Interested in hosting a gathering in your area?

Check out this blog post to learn about planning a local community event.