We support smaller, regional gatherings for NM community members to stay connected around the world. 

For 2023, there are currently gatherings being planned in the following locations:

  • São Paulo, Brazil (virtual, in Portuguese)
  • Malmö, Sweden
  • Asheville, North Carolina
  • Dayton, Ohio
  • New York City, New York
  • Palo Alto, California

These events are a simple way to connect with families and individuals with NM, learn about current care and research, and stay active in the NM community.

Upcoming Gatherings

We invite you to join us at one of our upcoming family gatherings.

Asheville, North Carolina

June 17, 2023 | 4-8pm (EST)
Host: Stacy Cossette

São Paulo, Brazil

June 14, 2023 | 8:30pm (BRT)
Virtual Gathering in Portuguese
Host: Leticia Machado

Palo Alto, California

June 10, 2023
Host: Marc Guillet

Malmö, Sweden

June 17, 2023 | 11am (CET)
Host: Anna Hallgren and Johanna Dahl

New York City, New York

August 5, 2023 | 1-4pm (EST)
Host: Lyn Baier

Dayton, Ohio

July 9, 2023 | 1:30-4pm (EST)
Host: Ali Reed

This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award #EACB-23111.

Interested in hosting a gathering in your area?

Check out this blog post to learn about planning a local community event.