We support smaller, regional gatherings for NM community members to stay connected around the world.
For 2023, there are currently gatherings being planned in the following locations:
- São Paulo, Brazil (virtual, in Portuguese)
- Malmö, Sweden
- Asheville, North Carolina
- Dayton, Ohio
- New York City, New York
- Palo Alto, California
These events are a simple way to connect with families and individuals with NM, learn about current care and research, and stay active in the NM community.
Upcoming Gatherings
We invite you to join us at one of our upcoming family gatherings.
Asheville, North Carolina
June 17, 2023 | 4-8pm (EST)
Host: Stacy Cossette
São Paulo, Brazil
June 14, 2023 | 8:30pm (BRT)
Virtual Gathering in Portuguese
Host: Leticia Machado
Palo Alto, California
June 10, 2023
Host: Marc Guillet
Malmö, Sweden
June 17, 2023 | 11am (CET)
Host: Anna Hallgren and Johanna Dahl
New York City, New York
August 5, 2023 | 1-4pm (EST)
Host: Lyn Baier
Dayton, Ohio
July 9, 2023 | 1:30-4pm (EST)
Host: Ali Reed
This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award #EACB-23111.