At A Foundation Building Strength (AFBS), we are dedicated to supporting the diverse and vibrant community of individuals and families affected by nemaline myopathy (NM). Since our inception in 2008, our mission has been to advance research for treatments for NM, and this has helped us raise and fund more than $5 million for innovative projects covering basic science, translational research, emerging therapies, and more.
Our Commitment to Inclusivity
We recognize and celebrate the diversity of our community in terms of background, race, ability, gender, age, nationality, ethnicity, genotype, and other factors. We believe that everyone is amazing in their own unique way. Our aim is to create an inclusive community where all individuals and groups see themselves reflected within the organization, both internally and externally.
Supporting Adults with Nemaline Myopathy
Following a period of self-reflection, we are renewing our commitment to advance research of NM and are explicit about our focus on both affected children and adults. We acknowledge the unique challenges faced by adults with nemaline myopathy and are committed to providing tailored resources and support for everyone, regardless of how the condition affects them.
Creating Opportunities for Connection
We believe it’s essential to create opportunities for affected children and adults of all ages and walks of life to connect, share their experiences, and learn from one another. We are convinced that by including everyone in our community, we can move forward together.
Putting Our Values into Action
AFBS is currently working on several initiatives that reflect our commitment to inclusivity. These include creating an ambassador program, providing resources for peer support, and offering connections to additional resources. We are here for you, and we are determined to make a positive impact on your lives.
We Want to Hear from You
We encourage you to reach out to us with any ideas, suggestions, or feedback on how we can best support you. We are unwavering in our commitment to supporting you and your families. Together, we can work towards a bright future for all those affected by Nemaline Myopathy.