We’re excited to share a vital Nemaline Myopathy research update from the front lines! Dr. Vandana Gupta‘s lab is making significant strides in two crucial areas of Nemaline Myopathy (NM) research: gene therapy for KLHL40-related NM and small molecule drug screening for KLHL41-related NM. These efforts are bringing us closer to understanding and treating this…
Read MoreAdvancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
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Upcoming Events
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2025 Scientific and Family Conference – Family Conference
SCIFAM FAMILY CONFERENCE We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA USA! This is a…
Friday, August 1, 2025 – Sunday, August 3, 2025 Hilton Philadelphia at Penn’s Landing
201 S Christopher Columbus Blvd
Philadelphia, PA -
2025 Scientific and Family Conference – Scientific Meeting
SCIFAM SCIENTIFIC MEETING – By Invitation Only We are thrilled to announce the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1-5 in Philadelphia, PA…
Monday, August 4, 2025 – Tuesday, August 5, 2025 Hilton Philadelphia at Penn’s Landing
201 S Christopher Columbus Blvd.
Philadelphia, PA -
2025 TCS New York City Marathon
Cheer On Team AFBS at the New York City Marathon! Cheer on Team AFBS at the New York City Marathon on Sunday, May 2nd! Five…
Sunday, November 2, 2025 New York, NY
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
On the Blog
Your Passport to Adventure: Recap of “Accessible Adventures” with Cory Lee
Dreaming of a getaway but wondering about accessible travel? You’re in luck! A Foundation Building Strength (AFBS) recently hosted an incredibly informative webinar, “Accessible Adventures – Travel Q&A with Cory Lee,” as part of our “Building Strength Together” Webinar series. Led by moderator and AFBS board member Lyn Baier, we spoke with renowned accessible travel…
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