A Foundation Building Strength

Leadership

Meet the dedicated team operating under one unifying mission: to find effective treatments for the rare neuromuscular disease Nemaline Myopathy. Together, they are working to accelerate the path to treatment and build a brighter future for those living with NM.

BOARD OF DIRECTORS

Meet the committed volunteers providing oversight of our research investments, programs and AFBS’s financial health.

STAFF

Meet the dedicated and talented staff members powering AFBS’s mission & vision.

SCIENTIFIC ADVISORY BOARD

Meet the scientists, doctors, researchers, and experts in their fields lending their knowledge and guidance to help AFBS plot our course towards developing treatments and therapies for Nemaline Myopathy.

COMMUNITY ADVISORY BOARD

Meet the dedicated group of individuals passionate about improving the lives of those affected by Nemaline Myopathy (NM). Comprised of teens and adults living with NM, as well as caregivers of children and adults with NM, the CAB provides diverse perspectives and lived experiences to guide AFBS’s efforts.

YOUTH AMBASSADORS

Meet our incredible AFBS Youth Ambassadors! They’re putting a face to the Nemaline Myopathy community, sharing their unique stories, and offering invaluable support to their peers.