Skip to content
A Foundation Building Strength
  • Facebook
  • Instagram
  • YouTube
  • Donate
  • About
    • Mission and Vision
    • History
    • Leadership
      • Board of Directors
      • Staff
      • Community Advisory Board
      • Youth Ambassadors
    • Impact
    • Financials
    • Contact Us
  • Research
    • Research Projects
    • Research Publications
    • Participate in Research
    • Scientific Advisory Board
    • Research Funding Opportunities
    • Research News
  • Get Help
    • Newly Diagnosed
    • About Nemaline Myopathy
    • Patient & Caregiver Resources
    • Get Connected
    • For Your Care Team
    • For Kids & Teens
  • Get Involved
    • Ways to Give
    • Ways to Fundraise
    • Raise Awareness for Nemaline Myopathy
    • Become a Philanthropic Partner
    • Events
    • Wear Your Support
  • News
Search
  • Search

Category: Faces of NM: Community Spotlights

Faces of NM: Community Spotlights

InstaNM: A New Series Highlighting Adaptations to Navigate a World with Nemaline Myopathy

May 9, 2023July 7, 2026

Join us as we take a peek into the lives of community members of all ages and from all walks of life as they show us how they’ve adapted to navigate their world with Nemaline Myopathy. First up, hit the ope road with Lucinda and her adapted driving vehicle.

Read More
Community Spotlight: Lucinda
Faces of NM: Community Spotlights

Community Spotlight: Lucinda

February 7, 2023March 9, 2023

This “Community Spotlight” series highlights and celebrates our unique and wonderful NM community members. The Q&A will give a peek into the lives of individuals living with NM and the diversity they represent.

Read More
‹ Prev123

Categories

  • Awards
  • Events
  • Faces of NM: Community Spotlights
  • News
  • Research

Get Updates

Sign up for our newsletter to stay up-to-date on news, programs and ways to get involved.

"*" indicates required fields

This field is for validation purposes and should be left unchanged.

Upcoming Events

  • VIRTUAL KIDS GATHERING – AGES 12 & UNDEROctober 10, 2026
  • 2026 TCS New York City MarathonNovember 1, 2026
  • AFBS VIRTUAL KIDS GATHERING – AGES 12 & UNDERNovember 14, 2026
  • AFBS RESEARCH UPDATE WEBINAR: FALL 2026November 14, 2026

Sign Up for Our Newsletter

Join our newsletter and we'll keep you in the loop about all of our latest news, programs and ways to get involved.

"*" indicates required fields

This field is for validation purposes and should be left unchanged.
  • About
  • Research
  • Get Help
  • Get Involved
  • News
  • Donate

A Foundation Building Strength is the only 501(c)3 organization solely dedicated to finding treatments for Nemaline Myopathy, while providing support and resources to the NM community. Tax ID Number: 26-1761329

 

Get In Touch

We want to hear from you. Email us at info@buildingstrength.org.

© Copyright 2026 A Foundation Building Strength | Privacy Policy

Nonprofit Website by Wired Impact

Back to Top