At AFBS, we are dedicated to finding treatments for Nemaline Myopathy (NM) while supporting the NM community. Our work is only possible because of the generosity and commitment of our partners. We invite you to join us in our mission to advance important research and improve the lives of those affected by NM.
Why Partner with AFBS?
Since 2008, AFBS has been at the forefront of the search for Nemaline Myopathy treatments. We have successfully brought together families affected by NM, top researchers, and industry partners to create connections, support NM patients, and advance research.
- Advancing Research: We have funded 42 research studies across the globe, developed accurate NM models for research, and launched the first NM patient-led registry and NM Tissue Biobank.
- Providing Care Information: We have collaborated with experts to develop comprehensive guides for families affected by NM and provide ongoing personal support for genetic testing.
- Creating Connection: Through our in person conferences, webinars, and online community meet-ups, we connect individuals and families affected by NM with each other and subject matter experts.
The Power of Philanthropic Partnerships
Our work is powered by the generosity of individuals, corporations, and philanthropic organizations who share our vision. With your support, we can continue to make strides in our mission to find treatments for Nemaline Myopathy and improve the quality of life for those affected. Your partnership will help us:
- Conduct the first Natural History Study for NM
- Grow our international registry, genetic confirmations, and tissue biobank
- Expand clinical research discoveries
- Host conferences and webinars for education and connection
Join Us in Building Strength
Whether you are an individual donor or represent a corporation or foundation, your contribution will make a transformative difference in the lives of those affected by Nemaline Myopathy. We invite you to download our PDF to learn more about our work and how your support can help advance our mission.
To make investments/donations to AFBS or connect us with potential philanthropic partners, please contact Executive Director Jen Tozer: jtozer@buildingstrength.org.