The SciFam Conference, held in conjunction with Cure CMD every 2-3 years, is a four-day neuromuscular conference for stakeholders in congenital muscular dystrophy, nemaline myopathy, and titin-related disorders, with in-person and virtual attendance options.
2025 SciFam Conference
We are absolutely thrilled to announce the long-awaited details for the 2025 Scientific & Family Conference (SciFam)taking place August 1-5 in Philadelphia, PA USA! This is a four-day neuromuscular conference is a unique opportunity for stakeholders from around the world – including affected individuals, families, researchers, and clinicians – to connect, share knowledge, and build community within the Congenital Muscular Dystrophy, Nemaline Myopathy, and Titinopathy fields.
AGENDA
Friday, August 1: Afternoon Welcome Reception & Evening Social Activities
Saturday, August 2: Affected/Family Plenary & Subtype-Specific Programming, Teen/Young Adult Programming, Kids Camp, Evening Social Activities
Sunday, August 3: Affected/Family Plenary & Subtype-Specific Programming, Bonus Sessions (Quality of Life topics), Kids Camp, Poster Session
Monday, August 4: Invitation-Only Scientific Symposium & Evening Reception/Poster Session (Researchers & Clinicians)
Tuesday, August 5: Invitation-Only Scientific Symposium & Afternoon Poster Session (Researchers & Clinicians)
A detailed preliminary agenda is available at scifam.info/2025-agenda. Please check back often for updates as the schedule develops!
REGISTRATION
Registration Fees (Affected Community):
Adults (18+): $150
Teens (13-17): $100
Children (2-12): $50 (waived if registering for Kids Camp)
Infants (0-23 months): Free
CONFERENCE VENUE & HOTEL RESERVATIONS
Hilton Philadelphia at Penn’s Landing
201 S Christopher Columbus Blvd
Philadelphia, PA 19106 USA
Standard Room Reservations*:
All attendees wishing to book a standard, non-accessible room must use this dedicated link. Please do not book directly with the hotel, as this link ensures our group discount ($199/night + tax) and helps us meet our room block commitment. You can customize check-in/check-out dates, number of beds, and request adjoining rooms (subject to availability). Bookings must be made by May 31st for up to 3 days before and after the conference.
*Due to the extremely limited amount of accessible rooms, we highly encourage you to book a standard room if at all possible. If you require an accessible room, please visit https://www.scifam.info/2025-information and click on “Venue & Accommodations” for further instructions.
Cure CMD, A Foundation Building Strength, and Team Titin are offering a limited number of scholarships for affected individuals, caregivers, and families. Learn more and apply here.
We are so excited to gather with you all in Philadelphia!
2022 SciFam Conference
The Nemaline Myopathy community joined together in person and virtually for the 2022 SciFam Conference the summer of 2022 in Nashville, Tennessee, for a four day neuromuscular conference.
Our team of researchers from around the world collaborated on their scientific progress and shared their latest discoveries.
NM community members and families connected and joined together for the first ever in-person Community Research Partner meeting, with incredible participation and feedback. We want our NM community’s voices heard so we can make monumental progress in research, and this was a huge step in the right direction.
We heard from experts in various fields offering resources and guidance, with presentations including:
- Orthopedics
- Care Optimization
- Physical Therapy
- Nutrition/Feeding
- Pulmonary Care
- Special Needs Financial Planning
- Body Awareness
- And much more
An incredible group of individuals hosted the NM Young Adult Panel and shared their dynamic experiences living with NM. The Kid’s Room was a huge hit with a balloon artist, face painting, science demonstrations, hands on reptile experience, movie night and so much more!
New this year, the Young Adult Room gave teens and young adults a chance to connect with their peers and discuss topics just for them.
Family and friends, both new and old, had a chance to connect in person at the conference, share stories, collaborate and enjoy the conference and the Nashville sights.