May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder and fostering connections within the NM community.
Throughout the month, we have a huge variety of exciting events and resources planned to help shine a light on Nemaline Myopathy, all culminating Nemaline Myopathy Awareness Day on May 31st!
The cornerstone of this year’s NM Awareness celebration is the NM Awareness Share-A-Thon taking place May 26th-31st!
What’s a Share-A-Thon? It’s a simple yet powerful way to amplify understanding and fuel discovery. Imagine a virtual walk-a-thon (minus the walking!) where your social media shares translate into tangible support for NM research through pledged donations.
➡️ Ready to make a difference? Here’s how:
* Pledge Your Support! Visit our Share-A-Thon page to make a pledge per share or a direct donation: tinyurl.com/afbsshare
* Become a Fundraising Champion! Create your own fundraising page and rally your friends and family to join the cause: go to tinyurl.com/afbsshare and click “Add a Participant”!
* Spread the Word! Starting Monday, May 26th, follow AFBS on Facebook https://www.facebook.com/BuildingStrength/ and Instagram https://www.instagram.com/afbuildingstrength/ and share our daily awareness posts!
Every share and every pledge brings us closer to effective treatments for Nemaline Myopathy.