Join us on February 29, 2024, as we come together to make a powerful impact on Rare Disease Day! This special occasion is a unique opportunity for the Nemaline Myopathy community to raise awareness, foster connections, and support crucial research initiatives.
🤝 Community Connect: Connect with fellow warriors and their families in a supportive and uplifting environment. Share experiences, exchange information, and strengthen the bonds within our community.
💙 Fundraising Initiatives: Contribute to our fundraising efforts to support ongoing research, education, and community support. Your generosity brings us one step closer to finding treatments for NM.
🌐 Awareness: Amplify our message by participating on social media on Facebook or Instagram. Share your stories, photos, and messages to bring awareness to Nemaline Myopathy and to the groundbreaking work AFBS is doing to find treatments for NM.
Let’s turn this Rare Disease Day into a moment of unity, strength, and hope. Your participation matters, and together, we can create a stronger future for Nemaline Myopathy! See you there! 💙