Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
A disease is rare when it affects fewer than 1 in 2,000 people. Nemaline Myopathy affects 1 in 50,000 people.
We want to use Rare Disease Day to bring awareness to Nemaline Myopathy. Stay tuned for more on how to share your colors and support Nemaline Myopathy awareness on February 28, 2023!