Rare Disease Day

Let’s Paint the Town Blue for Nemaline Myopathy Awareness on Rare Disease Day!

Join AFBS in raising NM awareness by rocking your favorite blue outfit and sharing your photos on social media! Ask your friends and family to do the same!

𝗪𝗮𝗻𝘁 𝘁𝗼 𝗯𝗲 𝗳𝗲𝗮𝘁𝘂𝗿𝗲𝗱 𝗼𝗻 𝗼𝘂𝗿 𝘀𝗼𝗰𝗶𝗮𝗹 𝗺𝗲𝗱𝗶𝗮? Send your blue-tiful pics to kemmert@buildingstrength.org!

𝗥𝗲𝗮𝗱𝘆 𝘁𝗼 𝘁𝗮𝗸𝗲 𝗶𝘁 𝗮 𝘀𝘁𝗲𝗽 𝗳𝘂𝗿𝘁𝗵𝗲𝗿? Share your NM experience through our online questionnaire (https://forms.gle/ZtD2yNYamJ2TMyav8) for a chance to have your story featured on Rare Disease Day!