We support smaller, regional gatherings for NM community members to stay connected around the world.
Stay tuned for more information about upcoming 2024 gatherings!
These events are a simple way to connect with families and individuals with NM, learn about current care and research, and stay active in the NM community.
Recent Gatherings
We hope you were able to join us at one of our recent family gatherings!
Asheville, North Carolina
June 17, 2023
Host: Stacy Cossette
São Paulo, Brazil
June 14, 2023
Virtual Gathering in Portuguese
Host: Leticia Machado
Palo Alto, California
June 10, 2023
Host: Marc Guillet
Malmö, Sweden
June 17, 2023
Host: Anna Hallgren and Johanna Dahl
New York City, New York
August 5, 2023
Host: Lyn Baier
Dayton, Ohio
July 9, 2023
Host: Ali Reed
This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award #EACB-23111.