A Foundation Building Strength

Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Resources & Support

Research

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
SEE OUR IMPACT

Upcoming Events

  • Feb 7

    AFBS Teen & Young Adult Virtual Gathering

    Join us for a relaxing, virtual gathering designed exclusively for teens and young adults (Ages 13 +) affected by Nemaline Myopathy (NM). Hosted by AFBS…

    Saturday, February 7, 2026 9:00 am – 10:30 am Online
  • Mar 7

    AFBS Virtual Kids Gathering (Ages 12 & Under)

    Join A Foundation Building Strength (AFBS) for a special virtual gathering designed just for kids ages 12 and under who are affected by Nemaline Myopathy…

    Saturday, March 7, 2026 9:00 am – 10:30 am Online
  • Apr 4

    AFBS Teen & Young Adult Virtual Gathering

    Join us for a relaxing, virtual gathering designed exclusively for teens and young adults (Ages 13 +) affected by Nemaline Myopathy (NM). Hosted by AFBS…

    Saturday, April 4, 2026 9:00 am – 10:30 am Online
View All Upcoming Events ›

Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

About Nemaline Myopathy
Who We Are
Advance Research

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

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On the Blog

Sunshine and Grit: The Unstoppable Force of Kaitlyn and Jackson Schara
News

Sunshine and Grit: The Unstoppable Force of Kaitlyn and Jackson Schara

Announcing the inaugural recipient of the AFBS “Strength in Action” Award. If you scroll through social media, you might stumble upon a video of a toddler with mischief in his eyes and an infectious smile, perhaps insisting–with the vocabulary of a child twice his age– that he needs to go to Waffle House. This is…

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Team AFBS NYC Marathon Recap: Building Strength, One Mile at a Time
Events

Team AFBS NYC Marathon Recap: Building Strength, One Mile at a Time

On Sunday, November 2nd, as tens of thousands of runners took to the streets of New York City, five dedicated athletes wore the AFBS logo with a profound sense of purpose. This was the main event. Our Team AFBS runners—Finley Craig, Leonardo Oliveira, Fernanda Depari Estelles Martins, Aidan Andrews, and Amara Andrews—embarked on the 26.2-mile…

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