Announcing the inaugural recipient of the AFBS “Strength in Action” Award. If you scroll through social media, you might stumble upon a video of a toddler with mischief in his eyes and an infectious smile, perhaps insisting—with the vocabulary of a child twice his age—that he needs to go to Waffle House. This is Jackson….
Read MoreAdvancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
Our Impact
Upcoming Events
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AFBS $100,000 Challenge: Deadline to Double Your Impact
Join us in the final hours of our most critical fundraising initiative of the year! The AFBS $100,000 Challenge ends at midnight on Wednesday, December…
Wednesday, December 31, 2025 11:59 pm Online -
AFBS Kids Gathering (Ages 12 & Under)
Kick off the new year with friends! Join A Foundation Building Strength (AFBS) for a special virtual gathering designed just for kids ages 12 and…
Saturday, January 3, 2026 9:00 am – 10:30 am Online -
AFBS Teen & Young Adult Virtual Gathering
Join us for a relaxing, virtual gathering designed exclusively for teens and young adults (Ages 13 +) affected by Nemaline Myopathy (NM). Hosted by AFBS…
Saturday, February 7, 2026 9:00 am – 10:30 am Online
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
On the Blog
Team AFBS NYC Marathon Recap: Building Strength, One Mile at a Time
On Sunday, November 2nd, as tens of thousands of runners took to the streets of New York City, five dedicated athletes wore the AFBS logo with a profound sense of purpose. This was the main event. Our Team AFBS runners—Finley Craig, Leonardo Oliveira, Fernanda Depari Estelles Martins, Aidan Andrews, and Amara Andrews—embarked on the 26.2-mile…
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