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Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
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Upcoming Events
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NEMALINE MYOPATHY AWARENESS MONTH
May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…
Friday, May 1, 2026 – Sunday, May 31, 2026 Online -
VIRTUAL KIDS GATHERING – AGES 12 & UNDER
Join A Foundation Building Strength (AFBS) for a special virtual gathering designed just for kids ages 12 and under who are affected by Nemaline Myopathy (NM). Hosted by AFBS…
Saturday, May 9, 2026 9:00 am – 10:30 am Online -
NEMALINE MYOPATHY AWARENESS DAY
May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…
Sunday, May 31, 2026 Online
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
On the Blog
Faces of NM: Ella’s Story and the Path Toward Treatment
At nine months old, Ella is defined by two distinct realities. To her parents, Erin and Paul, she is a sharp, observant infant with bright blue eyes and a smile that anchors their world. She mimics adult behaviors and is already beginning to learn early sign language with her mother. To the medical world, however,…
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