You’re Invited! Register now to join the first of our two virtual meetups during Nemaline Myopathy Awareness Month, where members of the NM community can come together to connect,…
Saturday, May 18, 2024 9:00 am - 11:00 am OnlineYou’re Invited! Register now to join the second in our series of two virtual meetups during Nemaline Myopathy Awareness Month, where members of the NM community can come together…
Tuesday, May 21, 2024 5:00 pm - 7:00 pm OnlineMay is Nemaline Myopathy Awareness Month, culminating in the First Annual Nemaline Myopathy Awareness Day on Friday, May 31, 2024! Join us as we come…
Friday, May 31, 2024 WorldwideWe are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.
NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this. Learn More.
The first installment in a series of profiles featuring the unique stories of members in our diverse and incredible Nemaline Myopathy community. Jonathan and His Foster Son Christopher Face the Challenges of Nemaline Myopathy Together Dallas, Texas resident Jonathan Roberts isn’t your average dad. He’s a respiratory therapist who formed an extraordinary bond with a…
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It’s Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all May long! We’re raising awareness for this rare muscle disorder and fostering connections within the NM community. Throughout the month, we have a huge variety of exciting events and resources planned to help shine a light on Nemaline Myopathy, all…
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