Your story has the power to shape the future of Nemaline Myopathy research! By completing the AFBS Perspectives and Priorities Survey, you’re not just answering…
Friday, October 31, 2025 OnlineDo you know someone who has gone above and beyond to make a difference in the Nemaline Myopathy community? Here’s your chance to help them…
Friday, October 31, 2025 OnlineCheer On Team AFBS at the New York City Marathon! Cheer on Team AFBS at the New York City Marathon on Sunday, November 2nd! Five…
Sunday, November 2, 2025 New York, NYWe are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
For Finley Craig, a full-time Aerospace Engineering student at the University of Colorado Boulder, “rocket science” isn’t just a figure of speech—it’s her daily homework. This November, she’s applying the same intense focus she gives her school work to a new challenge: running her first-ever TCS New York City Marathon. As a member of Team…
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For Fernanda Depari Estelles Martins of São Paulo, Brazil, taking on a new challenge is second nature. Last year, to celebrate her milestone 40th birthday, she completed an incredible 40 races. This year, she’s channeling that same determination into her biggest athletic challenge yet: the TCS New York City Marathon. But this race is different….
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