A Foundation Building Strength

Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Resources & Support

Research

Upcoming Events

  • May 1 – 31

    Nemaline Myopathy Awareness Month

    May is Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all month long! We’re raising awareness for this rare muscle disorder…

    Thursday, May 1, 2025 – Saturday, May 31, 2025 Online
  • May 18

    Virtual NM Community Meet-Up

    Celebrate Nemaline Myopathy Awareness Month with us! Join AFBS Executive Director Jen Tozer and board members for an engaging virtual NM Community Meet-Up on Sunday,…

    Sunday, May 18, 2025 1:00 pm – 2:30 pm Online
  • May 26 – 31

    Join the NM Awareness Share-A-Thon!

    Celebrate Nemaline Myopathy Awareness Month by participating in AFBS’s NM Awareness Share-A-Thon! Make a Difference, One Share at a Time! This isn’t just a fundraiser;…

    Monday, May 26, 2025 – Saturday, May 31, 2025 Online
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Get Involved

We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause.

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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

About Nemaline Myopathy
Who We Are
Advance Research

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this.

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Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
SEE OUR IMPACT

On the Blog

Community Spotlights

Faces of NM: Priscilla – A Faithful Heart & Curious Mind

Meet Priscilla, a bright and inquisitive 9-year-old from Mason, Ohio, living with Nemaline Myopathy (NM). NM is a rare genetic condition affecting the muscles, leading to significant weakness throughout the body. Priscilla carries the NEB gene variant and is considered to be severely affected by the disease, impacting her mobility, breathing, speech, and swallowing. A…

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