A Foundation Building Strength (AFBS) is absolutely thrilled to present our NM Awareness Month Recap and look back on a truly impactful May! For families and individuals touched by this rare neuromuscular disease, awareness is deeply personal – it’s about sharing our stories, speeding up research, and ultimately, building a path toward effective treatments. Our…
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May is Nemaline Myopathy Awareness Month, a time for our community to come together, share our stories, and amplify our voices. This year, A Foundation Building Strength is thrilled to introduce an exciting new way for everyone – NM community members and the public alike – to get involved: The NM Awareness Share-A-Thon! WHAT IS…
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This past weekend, Nemaline Myopathy community members of the New York area and our board members came together to cheer on Team AFBS as our five amazing runners tackled the iconic New York City Marathon. In addition to spending months training and bringing awareness to Nemaline Myopathy (NM), these generous marathoners raised over $30,000 for…
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This past weekend marked the start of something truly special for the NM community. A Foundation Building Strength launched their “Building Strength Together” Webinar Series, a platform designed to foster connection, support, and education for individuals and families navigating the challenges of NM. The first session focused on Emotional Wellness, a critical but often overlooked…
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It’s Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all May long! We’re raising awareness for this rare muscle disorder and fostering connections within the NM community. Throughout the month, we have a huge variety of exciting events and resources planned to help shine a light on Nemaline Myopathy, all…
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The 2023 TCS NYC Marathon was more than just a race; it was a powerful demonstration of collective strength, determination, and unwavering support for those affected by Nemaline Myopathy (NM). A Foundation Building Strength (AFBS) spearheaded a team of remarkable individuals who not only laced up their running shoes but also rallied communities and hearts…
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At A Foundation Building Strength, we are committed to making a positive impact in the lives of individuals and families affected by Nemaline Myopathy (NM), a rare muscle disorder causing muscle weakness. This summer, we’ve had the incredible opportunity to bring NM families together through a series of Regional Gatherings. These events not only provided…
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A Foundation Building Strength (AFBS) is excited to support smaller, regional gatherings for NM families to stay connected around the world.
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