Planning a Local NM-Focused Event Near You
January 17, 2023

This year, A Foundation Building Strength (AFBS) is excited to support smaller, regional gatherings for NM families to stay connected around the…

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A Year in Review: AFBS 2022
December 27, 2022

This past year, we have made incredible progress toward our mission of finding treatments for Nemaline Myopathy. Watch this video to…

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NYC Gathering Celebrates NM Families and Marathon Runners
November 12, 2022

Supporters, friends, AFBS Board Members and NM families joined together on November 5, 2022 in New York City to celebrate our…

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Pathway to a Natural History Study for Nemaline Myopathy
September 28, 2022

The fourth webinar in the series, “Amplifying the NM Community’s Voice”, focuses on the pathway to a Natural History Study for…

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A New Webinar Series: Amplifying the NM Community’s Voice
March 15, 2022

AFBS’ Youth Ambassador shares a brief summary of the first webinar in the series, “Amplifying the NM Community’s Voice”. The webinar…

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A Foundation Building Strength Receives Two Significant, Multi-Year Awards for Capacity-Building and Network-Building
January 31, 2022

PCORI and CZI awards lay foundation for game-changing growth and research momentum for Nemaline Myopathy

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AFBS Selected for Chan-Zuckerberg Initiative’s Rare As One Cohort
November 3, 2021

Today, A Foundation Building Strength announced its receipt of a $600,000 3-year grant from the Chan Zuckerberg Initiative (CZI) Rare as…

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