Our mission is to find treatments for Nemaline Myopathy.

Nemaline Myopathy

is a group of congenital, hereditary neuromuscular disorders that cause muscle weakness, generally nonprogressive, of varying severity where severe forms show up to 66% mortality rates before the age of two. It is considered one of the most severe muscle conditions of childhood. Currently no treatments or disease modifying therapies exist for nemaline myopathy and few potential candidate drugs have been identified.

Our Foundation

A Foundation Building Strength is a non–profit organization dedicated to finding treatments for Nemaline Myopathy.

We do this by funding research aimed at understanding protein function and disease progression, prerequisites to regulatory approval such as natural history, and gene expression and editing such as CRISPR, exon skipping, gene therapy, and related approaches.

13-nemaline

Upcoming Events

  • Cycle for Strength NYC

    March 6 @ 2:30 pm - 3:30 pmafbs-cycle-2016-nyc

    A Foundation Building Strength invites you to a SoulCycle ride to raise money for critical research! AFBS remains the only non-profit worldwide......

  • LoveLiv 2016

    March 13 @ 2:30 pm - 3:30 pmafbs-cycle-2016-la

    For its fourth annual fundraiser benefitting A Foundation Building Strength (AFBS), LoveLiv will host a Soul Cycle ride! AFBS is seeking to fund additional research grants and all proceeds from Cycle for Strength will fund those studies....

  • Cycle for Strength Palo Alto

    March 13 @ 7:00 pm - 8:00 pmafbs-cycle-2016-palo-alto

    A Foundation Building Strength invites you to a SoulCycle ride to raise money for critical research! AFBS remains the only non-profit worldwide......