Category: Community Spotlights

The first installment in a series of profiles featuring the unique stories of members in our diverse and incredible Nemaline Myopathy community. Jonathan and His Foster Son Christopher Face the Challenges of Nemaline Myopathy Together Dallas, Texas resident Jonathan Roberts isn’t your average dad. He’s a respiratory therapist who formed an extraordinary bond with a…

The AFBS community is filled with inspiring stories of resilience and strength. Today, we shine a light on Erica Redinbo, a mother running the 2024 Boston Marathon in honor of her daughter Kinsley, who bravely battled Nemaline Myopathy (NM). Erica describes Kinsley as the “strongest person I’ve ever known,” even though NM took her physical…

This “Community Spotlight” series highlights and celebrates our unique and wonderful NM community members. The Q&A will give a peek into the lives of individuals living with NM and the diversity they represent.

This “Community Spotlight” series highlights and celebrates our unique and wonderful NM community members. The Q&A will give a peek into the lives of individuals living with NM and the diversity they represent.

This “Community Spotlight” series highlights and celebrates our unique and wonderful NM community members. The Q&A will give a peek into the lives of individuals living with NM and the diversity they represent.