Do you or a loved one have Nemaline Myopathy? Imagine a world where treatments are readily available, and a network of patients, doctors, and research institutions work hand in hand towards developing cutting edge therapies for NM. This dream can become a reality, but it needs your help.

Register with the Congenital Muscle Disease International Registry (CMDIR). By joining, you’re not just gaining access to valuable resources and potential treatments, you’re fueling the engine of research that could lead to a cure.

IMAGE: CMDIR Website. Register with the Congenital Muscle Disease International Registry (CMDIR) to help advance NM Research!
Register with the Congenital Muscle Disease International Registry (CMDIR) to help advance NM Research!

Watch the inspiring video below featuring some of our youngest community members living with NM, and see why they’ve joined the CMDIR and how their participation is making a difference. Then, visit the CMDIR website and register today! Together, we can write a brighter future for everyone affected by Nemaline Myopathy.

Join the CMDIR today!

Why Register?

  • Be the first to know: Get notified about future clinical trials and potential therapies.
  • Contribute to a cure: Your data is crucial for researchers to develop effective treatments and improve quality of life for everyone with NM.

Your Impact Matters

By joining the CMDIR, you’re not just helping yourself, you’re making a tangible difference for the entire NM community. Your participation helps:

  • Attract federal funding and pharmaceutical and biotech investment: Securing resources to accelerate research and development.
  • Develop better treatments: Help researchers identify effective therapies and pave the way for personalized medicine.

Privacy is Paramount

The CMDIR prioritizes your privacy and security. Your personal information is never shared without your consent, and you have complete control over what data you contribute.

Every Piece Counts

The more information you share, the greater the impact. Even seemingly small details can provide crucial insights for researchers. Remember, in the fight against rare diseases, every person counts!

Join the Movement Today!

By registering with the CMDIR, you’re unlocking a world of possibilities. You’ll gain access to:

  • Genetic testing opportunities and support
  • Future clinical trials for which you may be eligible
  • The latest NM therapies and news
  • Scientific publications

Your data has power. Use it to empower yourself and your community. Join the CMDIR today!

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