An Inside Look at the Beggs Lab and a Call to Action for the NM Community Recently, A Foundation Building Strength’s Executive Director, Jen Tozer, had the opportunity to visit the renowned Beggs Lab at Boston Children’s Hospital, home to the groundbreaking AFBS funded Nemaline Myopathy Biobank. From getting a chance to see how these…
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At A Foundation Building Strength, we’re driven in our unwavering pursuit of treatments for Nemaline Myopathy (NM). Today, we’re excited to announce a significant step forward in that journey: a new series of grants designed to accelerate the development of effective therapies for this rare neuromuscular disorder. This RFA represents a major opportunity for researchers…
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An In-Depth Webinar Exploring Cutting-Edge Respiratory Devices and Therapies for NM A Foundation Building Strength recently hosted another insightful session in our Building Strength Together Webinar Series, this time focusing on “A User’s Guide to the Latest in Respiratory Therapy Devices.” This webinar offered a deep dive into cutting-edge respiratory equipment and techniques, providing invaluable…
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Thanks to the ongoing support of our donors, AFBS continued to make incredible progress on the road to treatment for Nemaline Myopathy in 2024. As we kick off 2025, we’re excited to share our itinerary for the year ahead – and it’s filled with promising milestones! HERE’S WHAT’S ON THE HORIZON: NAVIGATING THE ROAD AHEAD…
Read MoreWhat a year it’s been! As 2024 comes to a close, we’re taking a moment to celebrate the incredible strides we’ve made together on the road to find treatments Nemaline Myopathy. From research breakthroughs to community building, it’s been a year of milestones and achievements. We invite you to join us in reflecting on the…
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A Foundation Building Strength (AFBS) proudly announces a significant expansion of its Nemaline Myopathy (NM) research efforts through the launch of the Beggs Laboratory NM Biobanking Program at Boston Children’s Hospital. This groundbreaking initiative builds upon the existing AFBS-sponsored NM Tissue Repository and aims to revolutionize our understanding of NM, forging a path toward new…
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It’s Nemaline Myopathy Awareness Month, and A Foundation Building Strength is excited to celebrate all May long! We’re raising awareness for this rare muscle disorder and fostering connections within the NM community. Throughout the month, we have a huge variety of exciting events and resources planned to help shine a light on Nemaline Myopathy, all…
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Living with Nemaline Myopathy (NM)? Join the global fight for treatments & therapies! Register with the CMDIR and unlock access to clinical trials, resources, and a supportive community. Be the hero of your story.
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2023 was a landmark year for the AFBS community, marked by unwavering dedication, meaningful connections, and significant progress in the search for treatments for Nemaline Myopathy (NM). Our Year in Review video is a powerful testament to the collective strength and passion driving this journey.
Read MoreThe journey to find treatments for rare congenital muscle disease, Nemaline Myopathy, is a collective effort, and A Foundation Building Strength (AFBS) has been at the forefront of this mission. Recently, the organization concluded a groundbreaking 10-part webinar series titled “Amplifying the NM Community’s Voice,” made possible by the Patient-Centered Outcomes Research Institute (PCORI). This…
Read MoreRecently, the AFBS team had the privilege of attending the World Muscle Society Congress in South Carolina, where AFBS’ Scientific Director, Gus Dziewczapolski, AFBS’ Program Manager, Stacy Cossette, and AFBS’ PCORI Program Coordinator, Sarah Foye, participated in this enlightening event. Pictured Above: AFBS Scientific Director, Gus Dziewczapolski, AFBS Scientific Advisory Dr. Alan Beggs, AFBS Program Director Stacy…
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